Newsletter 1999

March - June - September - December - Research Report

VHL Family Forum, ISSN 1066-4130 Volume 7, Number 1
March  1999      Download a printable copy of this issue

• To Know, or Not to Know . . . That is the Question

• Linkage Test Unreliable - retesting may be advisable,
  by Dr. Virginia Michels, Mayo Clinic

• DNA Testing finds 100%

• Air Miles - Give Delta Miles to VHLFA

• Show Us Your Stuff! - Art Needed for Calendar

• The Most Important Person, by Craig Lundsted, M.S.W.

• Vitamins for Stamina

• Strength from Adversity

• Osteoporosis, a Side Effect of Steroid Use, by Altheada L. Johnson, MS, Registered Dietitian

• Ask the Experts: Pregnancy and VHL, by Dr. Stéphane Richard

• "Birth" Announcement

• Paralyzed?  Don't Give Up Too Soon!, by Gale L., Florida

• Atlanta Meeting June 4-6, 1999

• Too Expensive, and other reasons for not going to the meeting

• Introducing New Board Members:

  • Kathy Braden, Indiana

  • Susan McGuire, North Carolina

• New Zealand, by Jon Johnson

• News from Scandinavia, by Richard Harbud, Denmark

• Clinical Studies -- Can You Help?

  • Hearing Issues? Vertigo? Tinnitus?  NIH looking for participants for ELST Study

  • Smoking and Tumor Growth

  • Angiogenesis Inhibitor

• 4,000,000 Steps for VHL!

VHL Family Forum, ISSN 1066-4130 Volume 7, Number 2
June  1999      Download a printable copy of this issue

• The Structural Biology of VHL - progress in research

• Donor Registration for the Tissue Bank

• Anticancer Therapies

• VHL Symposium 2000 - Call for Papers

• Report from Bonn, Germany - local support groups forming

• Up for the Fight, by Peggy M.

• Thanks for the Miracles, by Joyce Graff

• Origins of Cancer - book review

• Tree for Hungary - translation into Hungarian

• England, Australia, Canada - News from affiliates

• Chat Sundays! - new interactive services from VHLFA

• Keep Up the Good Work - news from the California Chapter, by Dawn Cerf, Chapter Chair, California

• Churchill Hospital joins CCC program, by Dr. Susan Huson

• Prevention and VHL - Dr. Neumann wins Hufeland Prize

VHL Family Forum, ISSN 1066-4130 Volume 7, Number 3
September  1999      Download a printable copy of this issue

• Managing Pancreatic Tumors, by Libutti et al.

• Clinical Trials, Sugen and Novartis

• Spiritual Power, Deb H., Massachusetts

• Complementary Therapies, by Gale Lugo, Florida

• Teamwork in Atlanta

• No Better Time

• Resources on Discrimination

• New Ultrasound Software

• Ask the Experts: DNA Testing out of country

• Calendar Winners!

• Chapter News: South Dakota, Tennessee, Texas, Canada, Spain, Mexico

• Next Year in Rochester! -- VHL2000 meeting at Mayo Clinic

VHL Family Forum, ISSN 1066-4130 Volume 7, Number 4
December 1999      Download a printable copy of this issue

• What's Ahead for the 21st Century?

• Finding Elusive Pheochromocytomas, by Graeme Eisenhofer, Ph.D.

• Coping with Neck and Back Pain, by Deb Hogan, P.T.

• One More Round, by Peggy M.

• Special Children, Challenged Parents, by Robert A. Naseef

• Chapter News: Germany, France, Massachusetts, Indiana, Louisiana, Minnesota, New York, Tennessee, Florida

• Finding Hope Within, by Amy G., Arkansas

• Resources:

  • Glossary of genetic terms,

  • Help for transplant recipients,

  • German language website and online discussion

• Stress -- More or Less?

• Eight Gifts that do not cost a cent

• Anniversary, by Charlene W., Massachusetts

  • Poem by B. Howland

• Ask the Family

  • Stereotactic Radiosurgery

  • Heart Problems?

  • Pain Control

• Ask the Experts

  • Organ Donor Registration

  • Mutation Numbering Scheme

• Chat Schedule

• Update on Clinical Trials

• Considering a Clinical Trial?

• Homework Machines Available

• Changing Addresses?

VHL Family Forum, ISSN 1066-4130 Volume 7, Number 5
Research Report 1999      Download a printable copy

• VHL Care in the New Millennium, by Joyce Graff

• Helping One Person to an Early Diagnosis, by Toni Brunk

• 1999 Research Grants Awarded

• Virtual Slice Depth: Lessening the Impact of Tests and Treatments

• VHL in the 21st Century

• Progress! Financial review of Fiscal 1999

• Remember VHLFA in your Will

• Membership, Donations