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Resources
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VHL Family Forum, ISSN 1066-4130 Volume 8, Number 2
June 2000 Download a printable copy of this issue
- First in the Family: VHL Mosaicism, by Lindsay Middelton and Dr. Gladys Glenn
- Ask the Family
- Ask the Experts
- The Spouse, by Richard H., Denmark
- Resources: Hot Braille, Gift of Pain, Capitol Hill
- Happy Father's Day
- Thank you
- Pansies for Hope
- Getting Help with Depression, by Dan Kavanaugh, NIH
- Sleep, a poem by Rob W., Minnesota
- To the School Nurse, by Camille Wendekier, Pennsylvania
- Chapter News: Pennsylvania, New Hampshire, Wisconsin
- Conference 2000! - earlybird deadline June 28
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Hot Braille. At the HotBraille.com website, a small group of tech-oriented young men are doing good online. The service allows people to send letters, notes and other printed information to visually-impaired friends or family members who read Braille. You send e-mail and the HotBraille team converts it to Braille and mails it out, all for free. http://www.hotbraille.com
The Gift of Pain. I have been reading a book called "The Gift of Pain" by Dr. Paul Brand, who has worked with Leprosy patients in India. He also has worked with patients with RSD, a syndrome which causes a person to over-respond to trauma, by having a stiff and painful foot or hand. He has had some interesting observations on pain....He tells of a hospital in India where there was a shortage of nurses, so patients were asked to help each other. They all asked for less pain medicine..then when the staffing was worked out, the patients had nothing to do but to focus on themselves. They all asked for more pain med again!!!! Food for thought!!! I know that when I am in a lot of pain and I go to work and care for those who have similar pain, I forget about mine and focus on helping them. Good medicine is helping others. -- Deb H., Massachusetts
Capitol Hill. To see whats happening in the U.S. Federal government, to find a senator or congressman, see http://www.fedbuzz.com You can file health discrimination complaints online, get information on Occupational Health and Safety (OSHA), posters, free literature, and access to all branches of the US Government.
As printed in the VHL Family Forum 8:2, June 2000. For permission to reprint, please contact VHL Family Alliance, editor@vhl.org. Further information is available from the VHL Family Alliance, info@vhl.org.
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