This is just a brief message to thank you for the most complete and effective website I've visited. As a Clinical Geneticist, I'm constantly searching for clear, concise information for my patients and for my own use. You certainly exceeded my expectations.
-- Patricia Gordon, M.D., St. Jude’s Children’s Cancer Research Center, Memphis, Tennessee

We are now reaching more than 10,000 people in 63 countries. While the population served has grown 17% per year over the last two years, the operating budget has grown only 12% per year in that same time.

We pay no staff, we do not rent office space. The money we raise goes directly into programming and research, with only 2% for administrative costs. We are able to do this because of the hard work of a large number of dedicated volunteers in twelve countries around the world. Volunteers provide telephone and internet inquiry service, maintain our web site at www.vhl.org, and provide outreach in their local areas.

This year we awarded $90,000 in research grants, bringing the total to $340,000 over the last four years.

Call or write for a list of special projects that need funding. For example, we want to design better support for children diagnosed through DNA testing.

As printed in the VHL Family Forum Research Report 8:5, December 2000. For permission to reprint, please contact VHL Family Alliance, editor@vhl.org. Further information is available from the VHL Family Alliance, info@vhl.org.