A Test for Genetic Privacy, by Jerry Ackerman, The Boston Globe
A Pilot Study of Genetic Privacy, Discrimiation, and Informed Decision-Making, at the Genetic Alliance - Can You Help?
Looking for Lawyers in all the right places, Thomas D. Rodenberg, esq.
Uncharted Territory: Pheos and Psychological Symptoms, by Pierre Jacomet

"Based on the experience in our family, patients with pheochromocytomas can present with symptoms akin to neurotic or psychotic states."

Studies at NCI Seeking Patients, U.S. National Cancer Institute
Ask the Experts: Polycythemia and Hemangioblastoma
Ask the Family: Positional Vertigo
Human Research Protections Course available on the internet
Physical Activity and Immune Function, by James S. Huddleston, M.S., P.T.

"Moderate endurance exercise, such as brisk walking, stimulates positive changes in ... the body's first lines of defense ... On the other hand, high intensity exercise may have a negative impact on immune function."

Drink Water!
Meet the Directors: Jay Platt and Tom Rodenberg
Chapter Leaders meeting at conference in June
Pen-Friend needed for girl age 13
Speaking Tips, by Jay Platt
Health Management in von Hippel-Lindau: conference June 22-24, Palo Alto
Help Lead VHLFA to 2004 - nominations for Board and Committee positions due May 15.

A new continuing education program on the protection of human participants in research is now available online at http://cme.nci.nih.gov.

Developed by the National Cancer Institute (NCI) for the National Institutes of Health (NIH), the web-based course offers continuing medical education (CME) credit for physicians and contact hours for nurses and other members of research teams. The new program also responds to the mandate requiring education on human subjects protection for all investigators who apply for or receive NIH funds for research involving people.

Titled Human Participant Protections Education for Research Teams, the course incorporates interactive modules, case studies, and exercises. Topics covered include ethics, federal regulations, informed consent, and institutional review boards.

The program offers up to two hours of category 1 credit of the Physicians Recognition Award of the American Medical Association. Cine-Med., a continuing medical education provider, is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to sponsor the credits. Application for nursing contact hours is in progress.

This announcement also appears on the NCI Web site at: http://www.nci.nih.gov/aboutnci/index.html.

As printed in the VHL Family Forum 9:1, March 2001. For permission to reprint, please contact VHL Family Alliance, editor@vhl.org. Further information is available from the VHL Family Alliance, info@vhl.org.