A Test for Genetic Privacy, by Jerry Ackerman, The Boston Globe
A Pilot Study of Genetic Privacy, Discrimiation, and Informed Decision-Making, at the Genetic Alliance - Can You Help?
Looking for Lawyers in all the right places, Thomas D. Rodenberg, esq.
Uncharted Territory: Pheos and Psychological Symptoms, by Pierre Jacomet

"Based on the experience in our family, patients with pheochromocytomas can present with symptoms akin to neurotic or psychotic states."

Studies at NCI Seeking Patients, U.S. National Cancer Institute
Ask the Experts: Polycythemia and Hemangioblastoma
Ask the Family: Positional Vertigo
Human Research Protections Course available on the internet
Physical Activity and Immune Function, by James S. Huddleston, M.S., P.T.

"Moderate endurance exercise, such as brisk walking, stimulates positive changes in ... the body's first lines of defense ... On the other hand, high intensity exercise may have a negative impact on immune function."

Drink Water!
Meet the Directors: Jay Platt and Tom Rodenberg
Chapter Leaders meeting at conference in June
Pen-Friend needed for girl age 13
Speaking Tips, by Jay Platt
Health Management in von Hippel-Lindau: conference June 22-24, Palo Alto
Help Lead VHLFA to 2004 - nominations for Board and Committee positions due May 15.

Peggy Marshall of Corinth, Mississippi, is Chairman of the VHL Family Alliance, our Chief Operating Officer.. Members of our Board of Directors are listed on page 14. Last June four members were elected or re-elected to the Board. Joyce Graff was re-elected to the Board after a one-year hiatus and is now serving as Chairman of the Board. Others elected to the Board in June 2000 were Tom Rodenberg, Jay Platt, and Sheila Tepper. We will be introducing them in this and subsequent newsletters.

The Board of Directors is the panel of volunteer leaders who shape the agenda of the Alliance and see that its programs are carried out. Nominations are now open for additions to this group to be elected in June 2001. How about you? Please see page 16 for details.

Meet Jay Platt - Meet Tom Rodenberg

As printed in the VHL Family Forum 9:1, March 2001. For permission to reprint, please contact VHL Family Alliance, editor@vhl.org. Further information is available from the VHL Family Alliance, info@vhl.org.