A Test for Genetic Privacy, by Jerry Ackerman, The Boston Globe
A Pilot Study of Genetic Privacy, Discrimiation, and Informed Decision-Making, at the Genetic Alliance - Can You Help?
Looking for Lawyers in all the right places, Thomas D. Rodenberg, esq.
Uncharted Territory: Pheos and Psychological Symptoms, by Pierre Jacomet

"Based on the experience in our family, patients with pheochromocytomas can present with symptoms akin to neurotic or psychotic states."

Studies at NCI Seeking Patients, U.S. National Cancer Institute
Ask the Experts: Polycythemia and Hemangioblastoma
Ask the Family: Positional Vertigo
Human Research Protections Course available on the internet
Physical Activity and Immune Function, by James S. Huddleston, M.S., P.T.

"Moderate endurance exercise, such as brisk walking, stimulates positive changes in ... the body's first lines of defense ... On the other hand, high intensity exercise may have a negative impact on immune function."

Drink Water!
Meet the Directors: Jay Platt and Tom Rodenberg
Chapter Leaders meeting at conference in June
Pen-Friend needed for girl age 13
Speaking Tips, by Jay Platt
Health Management in von Hippel-Lindau: conference June 22-24, Palo Alto
Help Lead VHLFA to 2004 - nominations for Board and Committee positions due May 15.

Shanell is 13 years old and lives in Australia. She has recently learned she has VHL, and would like to correspond with another girl about her age who has VHL or another chronic illness. Interested pen-friends should write to info@vhl.org or by paper mail to 2001 Beacon St, Suite 208, Boston, MA 02135-7787 USA.

As printed in the VHL Family Forum 9:1, March 2001. For permission to reprint, please contact VHL Family Alliance, editor@vhl.org. Further information is available from the VHL Family Alliance, info@vhl.org.