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Health Management and VHL
Eighth Annual Conference on 22-24 June, 2001 Fairchild Auditorium Physicians: Friday noon thru Sunday noon
Lodging: Sheraton Palo Alto Hotel
John R. Adler, M.D., Medical Chairman; David Irving, VHLFA, Conference Chair.It’s time again to get together! This year’s annual meeting promises to be an outstanding educational experience for all, Special events are planned for Chapter Leaders, Beginners, and Physicians. Families are encouraged to invite their own health care professionals to attend this course, for which they can obtain continuing medical education credits from Stanford.
The program includes new diagnostics for pheochromocytoma and DNA status, advances in diagnostic imaging, new surgical approaches, and complementary strategies for wellness and stress management. Just a few of the featured speakers: Dr. Graeme Eisenhofer of the National Institutes of Health will talk with us about his new low-cost test for pheos. Dr. Peter Jackson of Stanford will talk about the state of VHL research. Dr. Yasser El-Sayed of Stanford will talk about Pregnancy and VHL. Dr. Elson Haas of Preventive Medical Center of Marin will present his work on integrated medicine, stress management, and chronic illness. Dr. Ronald Bachman of Kaiser-Permanente Oakland Hospital will talk about the role of DNA testing. Additional presentations will discuss advances in diagnostic imaging, in treatment of brain and spinal tumors, in treatment of kidney and pancreatic tumors, and in kidney transplantation.
And how are families and individuals to live with this foreshadowing of their future? This course examines advances in diagnosis and management of von Hippel-Lindau, one of the most common but least understood of the familial cancers. For the past seven years we have held patient/provider conferences in the U.S. and Europe.
For Families: This is your chance to meet other people affected by VHL, and get lots of loving support from people who know exactly what you’re going through. Come collect your share of hugs, as well as lots of current information on managing your health. The presenters have been asked to keep the language appropriate for a well-informed lay audience, so it should be just right for you!
For Beginners: Friday morning will begin with the course "VHL 101". This session will introduce the concepts and language that will be used in the conference, and is especially recommended for anyone who has not previously attended a VHL meeting. It’s also a great place to get to know the other family members attending the meeting. In Minnesota, the class got rave reviews.
For Chapter Leaders: Chapter Chairpeople, Contact people, or those interested in taking a leadership role in their local areas are welcome at Peggy M.’s meeting for Chapter Leaders, Friday morning.
Continuing Medical Education: This activity has been planned and implemented in accordance with the Essentials and Standards of the Accreditation Council for Continuing Medical Education through the joint sponsorship of the Stanford University School of Medicine at the VHL Family Alliance. The Stanford University School of Medicine is accredited by the ACCME to provide continuing medical education for physicians. Stamford University School of Medicine designates this continuing medical education activity for up to 13.75 hours in Category 1 credit toward the AMA Physicians’ Recognition Award. Nurses and genetic counselors may receive a certificate of attendance which can be submitted to their licensing boards along with the agenda to obtain credits.
Brochures will be mailed out at the end of March, or see the online registration system at http://www.vhl.org/conf2001.
As printed in the VHL Family Forum 9:1, March 2001. For permission to reprint, please contact VHL Family Alliance, editor@vhl.org. Further information is available from the VHL Family Alliance, info@vhl.org. |
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