A Test for Genetic Privacy, by Jerry Ackerman, The Boston Globe
A Pilot Study of Genetic Privacy, Discrimiation, and Informed Decision-Making, at the Genetic Alliance - Can You Help?
Looking for Lawyers in all the right places, Thomas D. Rodenberg, esq.
Uncharted Territory: Pheos and Psychological Symptoms, by Pierre Jacomet

"Based on the experience in our family, patients with pheochromocytomas can present with symptoms akin to neurotic or psychotic states."

Studies at NCI Seeking Patients, U.S. National Cancer Institute
Ask the Experts: Polycythemia and Hemangioblastoma
Ask the Family: Positional Vertigo
Human Research Protections Course available on the internet
Physical Activity and Immune Function, by James S. Huddleston, M.S., P.T.

"Moderate endurance exercise, such as brisk walking, stimulates positive changes in ... the body's first lines of defense ... On the other hand, high intensity exercise may have a negative impact on immune function."

Drink Water!
Meet the Directors: Jay Platt and Tom Rodenberg
Chapter Leaders meeting at conference in June
Pen-Friend needed for girl age 13
Speaking Tips, by Jay Platt
Health Management in von Hippel-Lindau: conference June 22-24, Palo Alto
Help Lead VHLFA to 2004 - nominations for Board and Committee positions due May 15.

Wanted: Spirited leaders and sound business heads to build an even stronger VHLFA in the next three years. That’s right -- we need you!

Nominations are open for positions on the VHLFA Board of Directors and its Committees. This group of dedicated volunteers shapes the agenda for VHLFA activities and manages the organization. This is an exciting time for VHLFA. We are growing steadily and with strength, building our research fund, and attracting more exciting grant proposals.

Can you help with any of these important goals?

We are seeking people with financial or management experience from industry or healthcare who can share their expertise and guide our growth.
We want to expand the Clinical Care program to include more centers and strengthen this important "chain of information" about VHL around the world.
We need a person with scientific background to participate in the process of reviewing VHL grants. These are grants awarded every year to investigators who are entering the field of VHL research.
We want to increase service to the Spanish-speaking community in the U.S. and throughout the Americas.
We need someone who can help to write up grant applications, get them filed on time, and manage communications around this important activity.

Please send your nominations -- of yourself or someone else -- along with a statement of the skills this person would add to the VHL management team or one of the Committees.

Inquire about any of these volunteer positions, or send board nominations to: info@vhl.org or 2001 Beacon St, Suite 208, Boston, MA 02135-7787 USA. Call +1-617-277-5667.

Board nominations are due May 15. Elections will be held at the Annual Meeting, during the Palo Alto conference in June.

The VHLFA in England is a registered public charity. Additional help is needed to manage this organization in the U.K. Please volunteer your help. Write to editor@vhl.org or 2001 Beacon St, Suite 208, Boston, MA 02135-7787 USA, or leave a telephone message or fax at +44 (0)20 7681-1796

As printed in the VHL Family Forum 9:1, March 2001. For permission to reprint, please contact VHL Family Alliance, editor@vhl.org. Further information is available from the VHL Family Alliance, info@vhl.org.