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Your Donations Make a Difference
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June 2001
VHL Family Forum, ISSN 1066-4130 Volume 9, Number 2
June 2001 Download a printable copy of this issue
- Study of rare disease helps unravel key question of human biology, by Rob Levy, Dana Farber Cancer Research Institute, Boston, Massachusetts
- Sleep Well!
- NCI Vaccine Study
- Your donations make a difference! by Fran Mott, Michigan
- Making tough choices, living with fear, by Susan Friedman
- Enfermedad de VHL - progress in Chile
- Action in U.K. to prevent "genetic underclass", by Zosia Kmietowicz
- Genetic testing derailed at BNSF
- Jay Platt on CNN!
- Long Wait for MRIs in Canada, by Tania Durand
- Call to British Patients, by Dan Whitmore
- Meet the Directors: Sheila Tepper, California
- Resources: carers, HIPAA, insurance
- Ask the Experts: epidural anesthesia, hiccups
- The Truth about Public Speaking, by Jay Platt
- Alabama Meeting, Chapter volunteers needed
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by Fran Mott, Michigan
VHLFA is supported almost entirely (95%) by individual contributions from people just like you. We appreciate your help at any time. Here are a few ideas:
Are you a Federal employee? The Combined Federal Campaign (or CFC) is the annual fund-raising drive conducted by Federal Employees in their workplace each fall, a kind of United Way for federal workers. Each year, Federal Employees and military personnel raise millions of dollars through the CFC that benefits thousands of non-profit charities. The employee would select from a variety of charities during their annual benefits enrollment in the fall, and have money deducted from their paychecks.
This year the VHL Family Alliance is participating in their national
campaign. If you work for the federal government or the post office, or
if you know someone who does, please tell them to look for us in this
fall's listing of eligible organizations. Thank you. In the 2005 Federal
CFC campaign, we are #9710. Numbers differ in state and private sector
campaigns, so be sure to look up the number. Find us as Cancer Research
Fund / VHL or VHL Family Alliance. We are a member of the Independent
Charities of America.
United Way. VHLFA is not a member of United Way, as they require that you have paid professional staff. However we are eligible for their "donor choice" program. You can write in VHL Family Alliance (with our address) as the recipient of the money you pledge to your local United Way. This way you can support your local United Way and VHLFA too!
Gifts of stock are a great way to support the work of the VHL Family Alliance. You can help the VHLFA and realize significant tax savings by making a gift of appreciated stock that has been held for more than one year. Donors of stock are entitled to claim a charitable deduction for the current market value of the stock and avoid capital gains tax on the increase in value. See your tax adviser for details.
As printed in the VHL Family Forum 9:2,
June 2001. For permission to reprint, please contact VHL Family
Alliance, editor@vhl.org.
Updated August 18, 2005 to refresh CFC information. Further information is available from the VHL Family Alliance, info@vhl.org.
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