|
|
 |
Jay on CNN!
|
June 2001
VHL Family Forum, ISSN 1066-4130 Volume 9, Number 2
June 2001 Download a printable copy of this issue
- Study of rare disease helps unravel key question of human biology, by Rob Levy, Dana Farber Cancer Research Institute, Boston, Massachusetts
- Sleep Well!
- NCI Vaccine Study
- Your donations make a difference! by Fran Mott, Michigan
- Making tough choices, living with fear, by Susan Friedman
- Enfermedad de VHL - progress in Chile
- Action in U.K. to prevent "genetic underclass", by Zosia Kmietowicz
- Genetic testing derailed at BNSF
- Jay Platt on CNN!
- Long Wait for MRIs in Canada, by Tania Durand
- Call to British Patients, by Dan Whitmore
- Meet the Directors: Sheila Tepper, California
- Resources: carers, HIPAA, insurance
- Ask the Experts: epidural anesthesia, hiccups
- The Truth about Public Speaking, by Jay Platt
- Alabama Meeting, Chapter volunteers needed
|
|
Jay Platt was a featured speaker at National Cancer Survivors Day, June 3, 2001. He was interviewed on CNN Sunday Morning. Jay, a retired Marine who has VHL, walked the Appalachian Trail in 1999 with one eye and a brain tumor.
"Ive learned theres something to be gained in all that we go through, especially the tough times," Jay said. "I think that having cancer has made me a better person. The Appalachian Trail became for me a metaphor for life. There are hills and valleys, just as there are ups and downs in life. You may be scaling a steep and difficult hill today, but over the crest of the hill there could be a beautiful valley, an easy walk down. A never quit attitude is what keeps you going when almost every fiber of your being wants to give up, or when others say it cant be done."
As printed in the VHL Family Forum 9:2, June 2001. For permission to reprint, please contact VHL Family Alliance, editor@vhl.org. Further information is available from the VHL Family Alliance, info@vhl.org.
|