|
|
 |
Meet the Directors
|
June 2001
VHL Family Forum, ISSN 1066-4130 Volume 9, Number 2
June 2001 Download a printable copy of this issue
- Study of rare disease helps unravel key question of human biology, by Rob Levy, Dana Farber Cancer Research Institute, Boston, Massachusetts
- Sleep Well!
- NCI Vaccine Study
- Your donations make a difference! by Fran Mott, Michigan
- Making tough choices, living with fear, by Susan Friedman
- Enfermedad de VHL - progress in Chile
- Action in U.K. to prevent "genetic underclass", by Zosia Kmietowicz
- Genetic testing derailed at BNSF
- Jay Platt on CNN!
- Long Wait for MRIs in Canada, by Tania Durand
- Call to British Patients, by Dan Whitmore
- Meet the Directors: Sheila Tepper, California
- Resources: carers, HIPAA, insurance
- Ask the Experts: epidural anesthesia, hiccups
- The Truth about Public Speaking, by Jay Platt
- Alabama Meeting, Chapter volunteers needed
|
|
The Board of Directors is the panel of volunteer leaders who shape the agenda of the Alliance and see that its programs are carried out. The slate of nominees for to the Board for 2001-2004, to be presented to the membership for election at the Palo Alto meeting, includes Kathy B., Indiana (for re-election); Altheada Johnson, New York (returning to the Board); Tom Lusk, Illinois; Patricia Rasmussen, Minnesota; and Tim Nielsen, California. We will be introducing them to you in the next few issues.
Meet: Sheila Tepper
As printed in the VHL Family Forum 9:2, June 2001. For permission to reprint, please contact VHL Family Alliance, editor@vhl.org. Further information is available from the VHL Family Alliance, info@vhl.org.
|
