Alabama Meeting

June 2001

VHL Family Forum, ISSN 1066-4130 Volume 9, Number 2
June 2001 Download a printable copy of this issue

Study of rare disease helps unravel key question of human biology, by Rob Levy, Dana Farber Cancer Research Institute, Boston, Massachusetts
Sleep Well!
NCI Vaccine Study
Your donations make a difference! by Fran Mott, Michigan
Making tough choices, living with fear, by Susan Friedman
Enfermedad de VHL - progress in Chile
Action in U.K. to prevent "genetic underclass", by Zosia Kmietowicz
Genetic testing derailed at BNSF
Jay Platt on CNN!
Long Wait for MRIs in Canada, by Tania Durand
Call to British Patients, by Dan Whitmore
Meet the Directors: Sheila Tepper, California
Resources: carers, HIPAA, insurance
Ask the Experts: epidural anesthesia, hiccups
The Truth about Public Speaking, by Jay Platt
Alabama Meeting, Chapter volunteers needed

by Peggy M., Mississippi

Our first meeting in Alabama was held at the University of Alabama Birmingham Medical Center. We had 12 attending and for some it was the first time to meet another person with VHL face to face.

It seems to surprise some people to see VHL affected individuals able to talk, walk and laugh. Jay Platt spoke and he certainly has a knack for making people smile.

The good news from this meeting is that we will be announcing very soon a new Chapter Chair for the Alabama Chapter.

Jay Platt speaking in Birmingham

The most important thing we do, the greatest gift we can give, is to let each other know that we are not alone.

Can you help in your own local community?

Please call or write to volunteer.

In the U.S.: Kathy B., Chapters Committee, (317) 894-3909, info@vhl.org

In other countries: Your country chairperson (if any), or Joyce Graff, +1 (617) 277-5667 or info@vhl.org

Group photo of attendees of the Birmingham meeting

Don & Peggy M. (Mississippi), Joseph C. and Liza P. (Alabama), in Birmingham.

As printed in the VHL Family Forum 9:2, June 2001. For permission to reprint, please contact VHL Family Alliance, editor@vhl.org. Further information is available from the VHL Family Alliance, info@vhl.org.