Pregnancy and VHL, by Yasser Y. El-Sayed, M.D., Maternal-Fetal Medicine, Stanford University Medical Center
- An excellent review of the literature with guidance for women with VHL from an expert in caring for mothers and babies in high-risk situations

"It is critically important to communicate fully with the doctor . . . even if you have no previous symptoms or no clear diagnosis of VHL. This information can make the difference between life and death for mother and child. . . . The patient, family, and medical team need to work closely together."

Three companion articles from women with VHL about their experiences with pregnancy. (All these stories have happy endings!)

Adventures in Pregnancy, by Pat T., Michigan

Karen's Story, by Karen H., Pennsylvania

Renée's Story, by Renée S., Ontario

Laura's Story, by Laura H., Massachusetts

VHLFA Down Under, by Don M., Mississippi
Eva Logan Honored for her work on the Hotline
Two Meetings in 2002:
- Update on VHL in Cleveland October 2002
- Padua Call for Papers, June 2002
Celebrating 50 years of Brain Research,
by Deborah C., Michigan
Carrying the Olympic Torch: Larry Bennett Honored
DNA Testing Update:
- More rapid results in England
- New source in Hungary
- Four sites now offer near-100% reliability
California coverage for people with VHL under GHPP
David’s Marathon, by David I., California
- David and his friend Marilyn completed the Portland Marathon

At the Board meeting in Palo Alto we honored Peggy and Don at the completion of their seven years’ service on the Board, and welcomed several new members. Left to right, back row: Patricia Rasmussen, Tim Nielsen, Tom Rodenberg, Don M., Matt Painter (Treasurer-elect); front row: Maria Shipton, Peggy M., Sheila Tepper, Myriam Gorospe, Kathy Braden, Joyce Graff. This year’s officers are: Chairman of the Board: Maria Shipton; Chairman of the Alliance: Joyce Graff; Vice-Chair, Kathy Braden. Not pictured: Treasurer Kelly Heselton and Secretary Altheada Johnson, Jay Platt and Tom Lusk.

Myriam Gorospe (right) was honored as Volunteer of the Year for her work as Research Director and as liaison with the Spanish-speaking community worldwide. A native of Spain, Myriam translated the Handbook and Family Health Tree into Spanish. Pierre Jacomet of Chile, our International Volunteer of the Year, led the project to create the first-ever book on VHL for doctors in Spanish language, produced and distributed to doctors throughout Latin America by Recalcine Pharmaceuticals.

As printed in the VHL Family Forum 9:4, Annual Report 2001. For permission to reprint, please contact VHL Family Alliance, editor@vhl.org Further information is available from the VHL Family Alliance, info@vhl.org.