Pregnancy and VHL, by Yasser Y. El-Sayed, M.D., Maternal-Fetal Medicine, Stanford University Medical Center
- An excellent review of the literature with guidance for women with VHL from an expert in caring for mothers and babies in high-risk situations

"It is critically important to communicate fully with the doctor . . . even if you have no previous symptoms or no clear diagnosis of VHL. This information can make the difference between life and death for mother and child. . . . The patient, family, and medical team need to work closely together."

Three companion articles from women with VHL about their experiences with pregnancy. (All these stories have happy endings!)

Adventures in Pregnancy, by Pat T., Michigan

Karen's Story, by Karen H., Pennsylvania

Renée's Story, by Renée S., Ontario

Laura's Story, by Laura H., Massachusetts

VHLFA Down Under, by Don M., Mississippi
Eva Logan Honored for her work on the Hotline
Two Meetings in 2002:
- Update on VHL in Cleveland October 2002
- Padua Call for Papers, June 2002
Celebrating 50 years of Brain Research,
by Deborah C., Michigan
Carrying the Olympic Torch: Larry Bennett Honored
DNA Testing Update:
- More rapid results in England
- New source in Hungary
- Four sites now offer near-100% reliability
California coverage for people with VHL under GHPP
David’s Marathon, by David I., California
- David and his friend Marilyn completed the Portland Marathon

. . . go to all the many volunteers who make the VHL Family Alliance work!

You have undoubtedly spoken or corresponded with one or more of the people on this page. Here are the faces that go with the names!

The hotline team: Peggy, Barbara, Eva, and Altheada

Peggy M. (center photo, left) chairs the 800 line committee, consisting of (clockwise) Barbara Redding, Eva Logan, Altheada Johnson

... and Lois Erickson. These ladies share coverage of our primary telephone line, 1-800-767-4VHL, which can be reached free from the U.S. and Canada.

Lois Erickson

Rachael Morgenstern in Brookline logs in the receipts and sends thank-you notes.

Rachael Morgenstern on the phone

Kelly Heselton, our Treasurer, keeps the books and works with the accountant each year.

Kelly Heselton

Altheada Johnson monitors our e-mail account, info@vhl.org, and replies to or routes messages to get timely answers. She is also a returning Board member, and we are delighted to welcome her back to the Board.

Altheada Johnson

Gale Lugo (right) moderates the English language online discussion group, http://vhl.clinicahealth.com.

Gale Lugo

The German discussion is moderated by Gerhard Alsmeier of Germany;

Gerhard Alsmeier

... the Spanish discussion by Dr. Karina Villar of Spain;
and the French discussion by Elaine Follansbee of New Hampshire.

In addition, the chapter chairs and country affiliates throughout the world form the core of our volunteer team. Their generous sharing of their time and energy make the VHL Family Alliance what it is. Your generous donations support their efforts with postage and supplies, telephone and internet charges.

Each country affiliate is a registered charity in that country. Donations go to support local programming and newsletters, and toward the research fund.

info@vhl.org, +1-800-767-4VHL or +1-617-277-5667

canada@vhl.org, 1-800-767-4845 or +1 (519) 641-7126

uk@vhl.org or +44 20 7681 1796 or +44 or +44 1547 550684

vhl-es@vhl.org, +34 9 3724 0358 or +34 6 1605 0514

vhl-de@vhl.org, +49-5931-929552 or +49 (30) 611-9057

As printed in the VHL Family Forum 9:4, Annual Report 2001. For permission to reprint, please contact VHL Family Alliance, editor@vhl.org. Further information is available from the VHL Family Alliance, info@vhl.org.