Pregnancy and VHL, by Yasser Y. El-Sayed, M.D., Maternal-Fetal Medicine, Stanford University Medical Center
- An excellent review of the literature with guidance for women with VHL from an expert in caring for mothers and babies in high-risk situations

"It is critically important to communicate fully with the doctor . . . even if you have no previous symptoms or no clear diagnosis of VHL. This information can make the difference between life and death for mother and child. . . . The patient, family, and medical team need to work closely together."

Three companion articles from women with VHL about their experiences with pregnancy. (All these stories have happy endings!)

Adventures in Pregnancy, by Pat T., Michigan

Karen's Story, by Karen H., Pennsylvania

Renée's Story, by Renée S., Ontario

Laura's Story, by Laura H., Massachusetts

VHLFA Down Under, by Don M., Mississippi
Eva Logan Honored for her work on the Hotline
Two Meetings in 2002:
- Update on VHL in Cleveland October 2002
- Padua Call for Papers, June 2002
Celebrating 50 years of Brain Research,
by Deborah C., Michigan
Carrying the Olympic Torch: Larry Bennett Honored
DNA Testing Update:
- More rapid results in England
- New source in Hungary
- Four sites now offer near-100% reliability
California coverage for people with VHL under GHPP
David’s Marathon, by David I., California
- David and his friend Marilyn completed the Portland Marathon

Director of Public Education

This year we made some inroads into the consciousness of the general public on what VHL is and how it affects those who must deal with it daily. This was done primarily through various speaking engagements throughout the country, as well as a major article written for Coping magazine (with an estimated 500,000 subscribers). Also, on Sunday, June 3rd, I was fortunate enough to be featured on CNN Sunday Morning Live during the National Cancer Survivors’ Day Celebration to speak about my experience with VHL.

As printed in the VHL Family Forum 9:4, Annual Report 2001. For permission to reprint, please contact VHL Family Alliance, editor@vhl.org. Further information is available from the VHL Family Alliance, info@vhl.org.