When you think that you are the only family faced with this disease, you feel so isolated. Hearing the experiences of all the families, you realize that we are all in the same boat, and thank goodness for the VHL Family Alliance. -- Sue L., Canada

We Need Your Help! -- by Peggy M.
Meet the Board of Directors
Research Report, by Myriam Gorospe, Ph.D., Director of Research
Special Thanks to our Volunteers!
Public Education initiatives -- by Jay Platt
Challenge! -- a corporate donor supports VHLFA and others
Teamwork for Health -- quotes from conference attendees
Let's Cure VHL in this Decade!
Progress -- Annual Report of disbursements

The Genetically Handicapped Persons Program (GHPP) provides health coverage for Californians 21 years of age and older who have specific genetic diseases including von Hippel-Lindau. GHPP also serves children under the age of 21 with GHPP-eligible medical conditions who are not financially eligible for California Children Services (CCS). The program is administered statewide through the GHPP office in Sacramento.

Although there are no maximum income eligibility requirements, families with Adjusted Gross Incomes (AGIs) exceeding 200 percent of the federal income guidelines pay an enrollment fee and treatment costs based on a sliding fee scale for family size and income.

For further information about GHPP, please call 1-800-639-0597.

As printed in the VHL Family Forum 9:5, December 2001. For permission to reprint, please contact VHL Family Alliance, editor@vhl.org. Further information is available from the VHL Family Alliance, info@vhl.org.