Teen Discussion Group Online

To join this group please send an e-mail to
teenswithvhl-subscribe@yahoogroups.com

Teens face many challenges daily by friends and acquaintances. One thing that I face daily is my diagnosis with a disease called von Hippel-Lindau. Many teens are diagnosed with this or they know someone who is. I did not feel that there was anything out there for us teens. That is why with the help of lots of people I created a Yahoo Group for teens with VHL.

This is a place where teens can share any questions they have on their experience with it and just talk. Right now we have about eight members. Hopefully this group will advance to the point that it is a top online support group.  Join teenswithvhl@yahoogroups.com

Note to parents: The conversation is for and by teens. There are also two friendly resource people who listen from the sidelines to make sure that any misinformation is corrected: Joyce Graff from Boston, and Matt N., an adult member who works professionally with teens in California.