Forthcoming Meetings

December 2002
Download a printable copy of this issue

Letter from Maria Shipton, Chairman of the Board
2002 Research Report, by Myriam Gorospe
Ask the Family: Hard to Talk about VHL
Dr. Sven Gläsker receives Fleckenstein Award
Kidney Cancer Research, by Dr. W. Marston Linehan
Our Heroes: Going the Extra Mile
Scott Cannon receives Sykes Award, by Joan C., New Jersey
Ohio Woman Fights VHL Disease, by Cari E., Ohio
Fowler Family Touches Hearts with Song, by Peggy M., Mississippi
Report from the Cleveland Meeting
Forthcoming Meetings:
- Ontario, May 2003
- Nashville, June 2003
- Kochi, Japan, April 2004
Annual Report 2002
Remembering VHL
Teamwork for Health

*Dr. Stephen Pautler*

Ontario May 2003 - Canceled

Update 2/03: The Canadian meeting, previously announced for Ontario, May 2003, has been cancelled. Efforts are under way to plan a more modest regional meeting late in 2003. Volunteers are needed to assist with planning and organizing the meeting. Please contact Jill or Sue at canada@vhl.org or 519-268-1567 to offer your help.

12/02: The first National Canadian meeting on VHL will be held in London, Ontario, in May 2003, co-sponsored with the University of Western Ontario. Dr. Stephen Pautler of the Division of Urology will chair the meeting. ~~The final date is still being arranged and will be posted when available.~~ Watch for further details in the March issue, or contact Jill Shields. This meeting is being designed for primary care physicians and patients and families, to provide a good understanding of VHL management.

Nashville June 21, 2003

Instead of one large U.S. meeting in 2003 we are planning at least two regional meetings in a one-day format, in hopes of making the meetings more available to more people. If you would like to host a meeting in your local area, please contact the Hotline 1-800-767-4VHL. The first meeting will be in the June timeframe, probably in Nashville, Tennessee. Watch the March newsletter or the website for further information.

*Dr. Taro Shuin*

Kochi, Japan, May 20-22, 2004

The next Medical Symposium is being planned for May 20-22, 2004 in Japan, hosted by Dr. Taro Shuin of the Department of Urology, Kochi University Medical School. Dr. Shuin heads one of the large research studies on VHL, the largest in Asia and one of the five top centers in the world. This meeting is designed as a forum for experts in VHL -- clinicians and researchers -- to share their latest findings and accelerate progress in management of VHL. Abstracts will be solicited for this meeting in late 2003. The language of the Symposium will be English. A separate conference designed for families will be held in Japanese adjacent to this meeting.

As printed in the VHL Family Forum 10:4, December 2002. For permission to reprint, please contact VHL Family Alliance, editor@vhl.org.