Newsletter 2002

March - June - September - December

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VHL Family Forum, ISSN 1066-4130 Volume 10, Number 1
March  2002      Download a printable copy of this issue

• Ophthalmic Issues in VHL, by Wayne E. Fung, M.D., San Francisco
• Can One Person Make a Difference? -- You Bet!, by Alice Coday, State of Washington
• Audrey on the Line, introducing Audrey Clifton
• Valentine Pageant seeks cure for VHL, by Kim P, Illinois
• Women React Differently to Stress
• June: Symposium in Padua
• October: Update on VHL in Cleveland
  • Continuing Medical Education and Patient/Provider Conference
• Eva Logan’s Voice -- remembering Eva
  • How Could this Happen? -- learning from Eva's experience
• Gale Lugo and the Florida Chapter, by Alva L., Florida
• Ask the Experts:
  • Skin Involvement?
  • Standing MRI?
• Healthcare Proxy
• Ask the Family: DNA Testing, a conversation from the online vhlfa discussion group
• VHL Stands for …
• Volunteering for Health
• Carrying the Torch: Larry Bennett - Winter Olympics, 2002

VHL Family Forum, ISSN 1066-4130 Volume 10, Number 2,
June  2002      Download a printable copy of this issue.

• Report from Padua
• New Logo!
• My Life, by Alva L., Florida
• Cleveland Meeting - October 11-13, 2002
• Miracle on 34th Street - by Joan C., New Jersey
• Volunteer of the Year - Kelly Heselton
• Regaining Balance - Deb C., Michigan

Just wanted to thank you again and again for your referral several months ago to Dr. Peter Choyke at NIH. He recently assessed my re-scan of kidneys and provided me with a clear and concise report. It was very good news, indeed: no solid tumors and no further action called for excepting a follow-up scan in one year. I had been so upset about the possibility that the lesions were much worse or more serious. Dr. Choyke’s opinion has allayed my fears.    I want you to know that it is precisely this aspect of the von Hippel-Lindau Family Alliance that I appreciate the most. I needed information, and you were there for me. – David I., California

• Best to Diagnose Pheo -- Laurie Barclay
• Socializing Helps -- Jennifer Warner

VHL stands for . . . how about         Very Hopeful Lives After all, we are working to find a cure.         -- Barbara M., Australia

• Ask the Experts
  • Dental Anesthesia
  • DNA Testing: Rearrangements and Deletions
• Ask the Family: Childbearing Choices
• Our New Affiliate Group in Spain -- Karina Villar, M.D.
• Carers Week, U.K.
• Resources: Healthfinder Espanol, The Medicine Program
• Meet the Directors
  • Thomas Lusk, Illinois
  • Maria Shipton, Pennsylvania
  • Andrew Lax, California
  • Mattison Painter, Tennessee
• VHL in Brazil!

VHL Family Forum, ISSN 1066-4130 Volume 10, Number 3
September 2002      Download a printable copy of this issue

• Pheochromocytoma: Often Inherited by Robert G. Dluhy, M.D.
• Fruits Lower Blood Pressure
• Banking Cord Blood
• The Top 10 Ways to Love the Negativity in Your Life
• Cleveland Meeting, October 11-13, 2002

• T-shirt Clearance Sale
• Our Experiences with DNA Testing
• Ask the Family: Dizziness on Winding Roads
• My Life with VHL, by Erika T., Switzerland
• Screening for Endolymphatic Sac Tumor
• ELST as diagnostic of VHL
• Family Fights Ignorance about VHL: Peggy M.
  • New Director of Volunteer Services
• Daily Vitamins Recommended
• VHL Information Grows in Chile
• Ask the Experts: Embolization
• New VHL Clinic in Boston: Brigham & Women's Hospital
• Teen Discussion Group Online, by Heather C., Michigan
• European Leaders

VHL Family Forum, ISSN 1066-4130 Volume 10, Number 4
December 2002      Download a printable copy of this issue

• Letter from Maria Shipton, Chairman of the Board
• 2002 Research Report, by Myriam Gorospe
• Ask the Family: Hard to Talk about VHL
• Dr. Sven Gläsker receives Fleckenstein Award
• Kidney Cancer Research, by Dr. W. Marston Linehan
• Our Heroes: Going the Extra Mile
• Scott Cannon receives Sykes Award, by Joan C., New Jersey
• Ohio Woman Fights VHL Disease, by Cari E., Ohio
• Fowler Family Touches Hearts with Song, by Peggy M., Mississippi
• Report from the Cleveland Meeting
• Forthcoming Meetings: 
  • Ontario, May 2003
  • Nashville, June 2003
  • Kochi, Japan, April 2004
• Annual Report 2002
• Remembering VHL 
• Teamwork for Health