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June Meeting in Nashville
Agenda -- Registration -- Hotel -- Directions
Please plan to join us at our Regional Meeting Saturday, June 21, in Franklin, near Nashville, Tennessee. Nashville is the first in a new series of four regional meetings a year. The VHL Family Alliance is always working to provide better support for our community. This year we are trying a new model for conferences in the United States. Instead of a single large two-day conference, we are dividing our meeting planning into three tracks:
With more meetings closer to home, we hope that more of our members will be able to attend the Regional meetings. You will have an opportunity to meet other individuals and families affected by VHL, to share your stories, and learn together how best to manage your health.
The first Regional meeting will be held Saturday, June 21, 2003, in Nashville, Tennessee. The Annual business meeting of the Alliance will be held briefly at lunch, and new board members will be elected at that time. A second Regional Meeting is being planned in Boston in the fall, and other meetings will be announced as plans mature.
Featured speakers at the Nashville meeting include:
Dr. Gladys M. Glenn, Medical Officer, Genetic Epidemiology Branch, National Cancer Institute. Dr. Glenn has been a clinical investigator at the National Cancer Institute since 1984. She holds concurrent appointments in Urologic Oncology, Genetic Epidemiology, and Genetics. She received a B.A. in Chemistry from Cheyney University in Pennsylvania, and completed residency and post-graduate training at Thomas Jefferson University Hospital in Philadelphia and Johns Hopkins Oncology Center in Baltimore. Since the beginning of the NCI Clinical Research Program for VHL and other forms of familial kidney cancer in 1988, Dr. Glenn has served as the primary physician for clinical evaluations, diagnoses, treatment recommendations, referrals and genetic analyses and counseling of more than 700 at-risk and affected family members.
Dr. Peter L. Choyke, Chief of MRI, Diagnostic Radiology Branch, Clinical Center, National Institutes of Health. Dr. Choyke trained at Yale-New Haven Hospital in Diagnostic Radiology and completed a fellowship in cross-sectional imaging at the University of Pennsylvania. He joined NIH in 1987 where he has worked closely with the Urologic Oncology Branch under the direction of Dr. W. Marston Linehan. Dr. Choyke has a special interest in the imaging of von Hippel-Lindau disease along with other hereditary conditions that affect the kidneys. He is especially interested in the abdominal manifestations of VHL and the impact imaging studies have on organ-preserving treatments.
Dr. Lewis Blevins, Founder and Director of the Pituitary Center at Vanderbilt University in Nashville. Dr. Blevins received a B.S. in Chemistry from East Tennessee State University in Johnson City in December 1982. He attended East Tennessee State University College of Medicine and received his M.D. degree in May 1987. Dr. Blevins was Assistant Professor of Endocrinology and Metabolism at the Emory University School of Medicine and is a member of the Endocrine Society. He has worked with VHL in the adrenals both at Emory and at Vanderbilt. In 1997, he received the Golden Apple award for excellence in teaching.
Registration. We are making every effort to keep costs down for these Regional meetings. The modest registration fee of $25 covers lunch and breaks on Saturday. Click here to register online on on site at the meeting.
Information is power, especially in living with VHL. The information you will gather from these presenters will help you maintain your health. The experience of hearing others tell their VHL story and learning from each other is not only touching, but empowering. Through these regional meetings you will make VHL Connections with other families, and with experts in the field.
Hotel space has been reserved at the Residence Inn by Marriott, 206 Ward Circle, Brentwood, Tennessee, 1-615-371-0100. Rooms must be booked by June 4 to be eligible for the special conference rate of $75 per suite for up to four people. Attendees are eligible for this rate Friday and Saturday nights. If you would like to stay and enjoy Nashville, they will accommodate you on Sunday night also for $75.
A welcome reception with cash bar will be held Friday evening in the courtyard of the Marriott. The meetings will be held all day on Saturday, June 21, in the Fellowship Hall at St. Paul’s Episcopal Church, 510 West Main Street, Franklin, Tennessee.
-- Peggy M., Director of Volunteer Services, and Kathy B., Director of Chapters
Annual Regional Meeting VHL Family Alliance, Nashville TN. Saturday, June 21, 2003
Agenda
9:00am Welcome to Nashville – Kathy B./Peggy M.
Meet the Volunteers
9:10-9:30 What is VHL/Terminology Overview – Joyce Graff
9:30-10:00 Dr. Gladys Glenn, Medical Officer, Genetic Epidemiology Branch, National Cancer Institute, Bethesda MD
10:00-10:15 Questions and Answers 10:15-10:30 Break
10:30-11:00 Dr. Peter Choyke, Chief of MRI, Diagnostic Radiology Branch, Clinical Center, National Institutes of Health, Bethesda MD
11:00-11:15 Questions and Answers
11:15-11:45 Dr. Lewis Blevins, Founder and Director of the Pituitary Center at Vanderbilt University, Nashville TN
11:45-12:00p Questions and Answers
12:00-1:00 Lunch (Catered)/Annual Meeting/Election of Board Members
1:00-5:00 "VHL Connections" – Moderated by Kathy B., Peggy M. and Maria S. (Break Included)
The VHL Family Alliance is hosting our first Regional Meeting in Nashville, TN on June 21st from 9:00am to 5:00pm. This one-day meeting will feature a program of medical speakers and a new session called "VHL Connections", a time to share experiences and learn from one another. The meeting will be held at:
To pre-register, call or fax Peggy M. at 1-800-767-4845 option 3, or click here to register online Please join us, as we learn and share our VHL experiences! As printed in the VHL Family Forum 11:1, March 2003. For permission to reprint, please contact VHL Family Alliance, editor@vhl.org.
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