A new VHL Clinical Center has recently opened at Columbia University and the New York Presbyterian Hospital in New York City. The comprehensive clinical center will provide coordinated care for all aspects of a patient’s clinical care including diagnostic imaging and surgical intervention.
Initial contact with the medical center and care coordination is provided through the oncogenetics office, directed by Dr. Wendy Chung. Donna Russo, a cancer genetic counselor, speaks with each patient on the phone to answer questions and determine the patient’s individual needs. If genetic testing is required to confirm the diagnosis of VHL or to test pre-symptomatic family members, Dr. Chung facilitates the counseling and genetic testing.
Patients come to the VHL Clinical Center and are seen by multiple specialists and have tests done on the same day. Multiple members of the same family can also be seen on the same day. The most advanced imaging methods are available along with a full team of ophthalmologists, urologists, general surgeons, neurosurgeons, and endocrinologists to facilitate surveillance and management of all manifestations of VHL. The VHL team meets to coordinate procedures and follow up care of the patient, and the patient receives a written summary of the recommendations of the team. Our group of specialists works together to offer exceptional patient centered clinical services.
The VHL center can be reached by email at wkc15@columbia.edu or by phone at +1 (212) 305-0190.
As printed in the VHL Family Forum 11:2, June 2003. For permission to reprint, please contact VHL Family Alliance, editor@vhl.org.