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Why I like the Online Discussion Group
I understand how you feel about talking about VHL. I find it easier to talk to people in the online support group than I do my family and friends. They are supportive, but those who have or are experiencing anything to do with VHL seem to be more supportive and helpful.
I had a tumor removed from my brain in April and 2 tumors removed from my kidney on the in October. I was really scared about the kidney surgery, but everyone here helped me get through my fears. I knew because of them what to expect, and I found the greatest comfort here.
It is hard to deal with, but if you need someone to talk to, I am here. If I can't help you with certain things, someone here can. I still have my fears, and my down times, but the group pulls me through.
-- Loretta G., Tennessee
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As printed in the VHL Family Forum 11:2, June 2003. For permission to reprint, please contact VHL Family Alliance, editor@vhl.org.
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