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Goals 2004
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- Natural History of Hemangioblastomas,
reporting recent research from the U.S. National Institutes
of Health
- American Brain Tumor Association Sharing
Hope Conference
- New NSGC President: Robin Bennett
of Washington State
- VHLFA Spanish Hotline opens!
- Pioneering for Hope, by Tammy N.,
Mississippi
- Patient and Family Travel, by Altheada
J., New York
- The Gift of Friendship, by Jan
C., Illinois
- Nominations Open for Board of Directors
- June Meeting in Nashville
- Do I Want to Know? by Ken C., Indiana,
age 14
- A 'Normal' in DNA Testing Can Bring
New Problems, by Carey Goldberg, The Boston Globe
- Canada Meeting Postponed
- Health Disparities
- Crucial Conversations in Hospitals
- A Man's Guide to Coping
- First Meeting in Japan, by Hanako
Suzuki, Tokyo, Japan
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The Board has set these goals for the coming year:
- Strengthen our core services
- Expand our capacity for growth
- Support the existing clinical trials
- Seek out research proposals that lead more directly to improved therapies
- Update and redistribute the VHL Handbook
- Reach out to under-represented populations
- Provide more convenient access for doctors to VHL info
As printed in the VHL Family Forum 11:4,
Annual Report 2003. For permission to reprint, please contact VHL
Family Alliance, editor@vhl.org. |
