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Walk for VHL
My sister was recently diagnosed with VHL, and DNA testing revealed that my mother has it too. Even though I do not have VHL, it still affects me very much. It is such an un-heard-of disease, yet many people have it and do not even know that they do. I would like to do something to raise awareness of VHL and to raise money to benefit the VHLFA. One of the only ways to ease the struggles of such a disease is to let others know about it so they can help. I will be organizing a walk-a-thon this year to benefit VHLFA. -- Ariel R., age 15, New Jersey
As printed in the VHL Family Forum 11:4, Annual Report 2003. For permission to reprint, please contact VHL Family Alliance, editor@vhl.org. |
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