|
|
 |
Newsletter 2003March - June - September - Annual Report - DecemberClick the
VHL Family Forum, ISSN 1066-4130 Volume 11, Number 1March 2003 Download a printable copy of this issue
VHL Family Forum, ISSN 1066-4130 Volume
11, Number 2
|
icon to download a printable copy of the issue| Please give generously through your workplace campaign: |
- Britain Plans a Genetic Census, adapted from an article by Gwen Kinkead, New York Times
- UK Welcomes Mary Weetman, new chairman
- Von Hippel-Lindau -- Care in the U.K., by Peter Risby, Sally Watts, and Mary Weetman
- Nashville was Great! -- report from the meeting June 21, 2003
- By-Law Changes, by Thomas D. Rodenberg, esq., Director
- Yard Sale Fundraiser, by Lynn G., Tennessee
- VBS Supports VHL, contributed by Audrey C., North Carolina
- Kochi Symposium: Call for Papers
- Join us at Regional Meetings:
- Recognizing Caregivers, by Gary Barg, Editor, Caregivers.com
- Volunteer of the Year, Cari E., Ohio
Non-U.S. Members are asked to support their local affiliate group first. Donations to the international research campaign are always welcome at the address listed below. Thank you!
VHL Family Forum, ISSN 1066-4130 Volume
11, Number 4
Annual Report 2003 Download
a printable copy
of this issue
- 100 Years of Progress from von Hippel's paper in 1904
- Research Digest, by Joseph Verdi, Director of Research
- Goals for 2004
- Walk for VHL -- by Ariel R., New Jersey
- Grants Funded 2003-04
- Teamwork for Health -- Let's Cure VHL in this Decade!
- Annual report, Fiscal 2003
- Remember VHL in your Will
- Please give generously! We Need Your Help!
VHL Family Forum ISSN 1066-4130 Volume
11, Number 5
December 2003 Download
a printable copy
of this issue
- Dogs do more than Bark - Adeline V. from Belgium
- Early Results from Clinical Trial - The trial of Novartis PTK-787 in Boston is looking very encouraging.
- What you need to know about clinical trials
- A Tribute to my Mom - from Emily S., New Jersey
- Ask the Experts - pancreas question, by Dr. Steven Libutti, National Institutes of Health
- Regional Meeting Notes - Lahey Clinic, Boston
- 10 Warning Signs of Caregiver Stress
- Newsletter Schedule Changing
- Eugen von Hippel - the centennial of his ground-breaking paper
- Remembering Uncle Eugen - from his great-nephew, Eric von Hippel, a professor at M.I.T.
- Clinical Care Center in Philadelphia - Hospital of the University of Pennsylvania
- Dr. Lewis Joins our Medical Advisory Board -Dr. Richard Lewis, ophthalmology and genetics, Baylor University School of Medicine
- Ask the Family: Dandelions and Cancer
- Why me? Why not me? - Michael L. and Emily S.
- Ask the Family: Dandelions and Cancer - by Joyce Graff
- Please Join us at a Regional Meeting
- New York, June 19, 2004, VHLFA Annual Meeting
- Northwest Region, Everett, Washington, Jan/Feb 2004
- Western Region, Los Angeles, February 21, 2004
- Southeast Region, Tampa, Florida, January 31, 2004
- Southwest Region, Dallas, Texas, March/April 2004
- In Appreciation of Peggy and Don M.
- 6th International Symposium on VHL
in Kochi, Japan,
May 20-23, 2004 - Abstracts - Registration
