Newsletter 2004

• Endolymphatic Sac Tumors in von Hippel-Lindau, reporting three new articles by Russell R. Lonser, M.D., et al.
• VHL Meeting in Denmark, by Vibeke Harbud, Chairman
• New Renal SPORE in Boston, by Michael Atkins, M.D.
• Wedding Celebration, by Ashlee P., Saskatchewan
• New Clinical Care Center in Nashville, Tennessee
• Melissa T. of Texas prepares for the Lake Placid Triathlon 2005
• Research on Fatigue
• More than 500 Mutations found in the VHL gene
• New Leadership for VHL France
• New Country Affiliate in Switzerland
• Pre-Implantation Genetic Diagnosis (PGD) for VHL, by Wendy K. Chung, M.D., Ph.D., New York
• Update on Clinical Trials
  • Kidney Pre-surgery clinical trial
  • Eye Lesions
  • Research project needs Fetal Tissue
• Caution before taking Herbal Remedies
• Woman hopes to Educate Doctors, by Scott Rockefeller, Binghamton, New York
• Songs of Love for Children
• Report from the VHL Symposium, Kochi, Japan
• VHL in China, Guangzhou and Beijing
• Birthday Fundraiser in Canada, by Trish B., Alberta
• Inspirational Gifts

VHL Family Forum, ISSN 1066-4130 Volume 11, Number 3
Annual Report issue November 2004
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• Stronger Base, Reaching Outward - Please join us!
• Dr. Judith Frydman wins award - Dr. Judith Frydman, Stanford University
• 2004 Research Digest - Joseph M. Verdi, Ph.D., Director of Research
• 2005 Goals of the VHLFA Board
• Challenge! Your Gift Goes Farther!
• Volunteers Making a Difference -
  • Altheada J., New York
  • Robin K., Texas
  • Gale L., Florida
  • Fran M., Michigan
• Remember VHLFA in your Will
• Gifts of the Artists - For a gift of $150 or more, you can choose one of these wonderful performances as your free gift.

VHL Family Forum, ISSN 1066-4130 Volume 12, Number 4, December 2004
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• Improving Diagnosis of VHL - Results from our Survey
• New Handbook, by Joyce Graff, Editor
• Allergies to Contrast Media, by Peter L. Choyke, M.D., U.S. NIH
• His Valiant Battle: Lt. Col. John Rainier, by Ellen R., Indiana
• Hope and Life-Saving Action, by Melissa K., California
• Healthy Kidneys, by Tammy M., Pennsylvania
• My Miracle Baby, by Amy W., R.N., Kansas
• Memphis Meeting: raising diagnosis in the Mid-South
• Educating Congress
• Calendar of Meetings 2005
• The Nordic Workshop
• Going for the Gold! Meet the Janus Challenge!
• Gifts of the Artists - For a gift of $150 or more, you can choose one of these wonderful performances as your free gift. Help us meet the Janus Challenge!