By Selvi Palaniappan, MS, CGC, Vanderbilt University,
Nashville, TN
Dr. Blevins
A new VHL Clinical Center has recently opened at Vanderbilt University
and the Vanderbilt-Ingram Cancer Center in Nashville. This comprehensive
clinical center will become one of three VHL clinical care centers in
the Southeast and will provide coordinated care for all aspects of a patient’s
clinical care.
Initial contact with the medical center and care coordination of care
is provided through the Family Cancer Risk Service, directed by Susan
Caro. Selvi Palaniappan (say “pal-NIP-pan”), a cancer genetic
counselor, speaks with each patient on the phone to answer questions and
determine the patient’s individual needs. In addition to coordinating
the annual care of VHL patients, counseling and genetic testing is also
available to confirm a diagnosis of VHL or to test family members who
do not have symptoms.
The most advanced imaging methods are available along with a full team
of ophthalmologists, urologists, general surgeons, neurosurgeons, and
endocrinologists to manage screening and management of all VHL issues.
Adult patients will be followed annually by Jeff Sosman,
M.D., professor of Medicine, a kidney cancer specialist, and children
will be followed by James Whitlock, M.D., Craig-Weaver Associate Professor
of Pediatrics and director of Pediatric Oncology.
Endocrinologist Lewis Blevins, M.D., who has a special
interest in VHL, will follow patients annually to monitor for pheochromocytoma.
Together with the team of physicians and counselors at Vanderbilt Medical
Center, the goal is to provide annual screening and management in a caring
environment. The VHL Clinical Center at Vanderbilt Medical Center can
be reached by e-mail at selvi.palaniappan@vanderbilt.edu
or susan.caro@vanderbilt.edu
or by phone at +1-877-688-7555.
1. Sosman JA, Targeting of the VHL-hypoxia-inducible
factor-hypoxia-induced gene pathway for renal cell carcinoma therapy.
J Am Soc Nephrol. 2003 Nov; 14(11):2695-702. 2. Beatie J and Blevins LS, Jr., Pheochromocytoma
May Herald a Diagnosis of von Hippel-Lindau Disease. The Endocrinologist
1997; 7: 344-353.
As printed in the VHL Family Forum 12:2, August/September
2004. For permission to reprint, please contact VHL Family Alliance, editor@vhl.org. Further information is available from the VHL Family Alliance, info@vhl.org.