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Teamwork for Health

Annual Report issue November 2004
Download a printable copy of this issue

 

The Board has set these goals for the coming year:

 

- Strengthen our core services
- Expand our capacity for growth
- Support the existing clinical trials
- Seek out research proposals that lead more directly to improved therapies
- Distribute the revised VHL Handbook
- Reach out to under-represented populations
- Provide more convenient access for doctors to VHL information
- Build a better tissue bank to support research

 

I have to admit to being surprised at how much brighter the future looks since I posted on the VHL online forum and cannot express how grateful I am for the replies I have received. — Ken C., Canada

 

We need more doctors able to give a proper diagnosis that it’s VHL and not just the common cold. Keep up the great work on educating the medical world. You are priceless! -- Cindy P., Wisconsin

 

Thank you! We have learned so much from the newsletters! -- Frank C., Colorado

 

As printed in the VHL Family Forum 12:3, November 2004. For permission to reprint, please contact VHL Family Alliance, editor@vhl.org. Further information is available from the VHL Family Alliance, info@vhl.org.