Newsletter 2005

April - September - Annual Report - December

VHL Family Forum, ISSN 1066-4130 Volume 13, Number 1
April  2005     Download a printable copy of this issue

• Survey! Please share your experiences (if any) with stereotactic radiosurgery. Results will be reported in the August 2005 issue.

• 20 Tips to Help Prevent Medical Errors

• Top 40 Under 40: Scott C., New Jersey

• Recycle for VHL!

• Hello to the VHLFA Family! by Sharon H., Michigan

• How the Weather Affects your Life, by Lucas J. Mire, the Weather Channel

• Ask the Family: Brain Tumor Size

• Green Tea -- Best As a Beverage

• Smoking and Kidney Cancer Risk, by Jay D. Hunt

• Book Review: Brain Tumors: Leaving the Garden of Eden, by Paul M. Zeltzer, M.D.

• Finding a Neurosurgeon

• Pancreas Study Open at the U.S. National Cancer Institute

• Meetings:

  • San Antonio, Texas, May 21, 2005

  • Binghamton, New York, June 4, 2005

  • VHLFA Annual Meeting, Chicago, June 25, 2005

• Handbook in Spanish, French, and Chinese!

• Going for the Gold! Meet the Janus Challenge!

• Gifts of the Artists - For a gift of $150 or more, you can choose one of these wonderful performances as your free gift. Help us meet the Janus Challenge!

VHL Family Forum, ISSN 1066-4130 Volume 13, Number 2,

August/September  2005 Download a printable copy of this issue

• Stereotactic Radiosurgery or Gamma Knife

  • reporting the results of the survey opened in April 2005

• Ask the Family: Affected Children

• Cancer Survivors Gather for Support, Kathy S., Wisconsin

  • Is VHL Cancer?

• Radiation Causes Cancer, But Rarely

• Resources: Grants to Individuals with disabilities

• New Chairman for Kansas and Missouri, Barbara S., Kansas

• Brooke McLaurin: Miss North Carolina 2005

• Another Great Birthday! Alex A., New Jersey

• Gokey-Thomas Can't Stop Smiling about "Amazing" Day, by Scott Kindberg, Post-Journal, Jamestown, New York

• One Biomarker for Angiogenesis - reporting research of John Heymach, Dana Farber

• Resources: Project Mobility

• VHL in England, by Mary Weetman and Carol Giblin

• VHL Handbook in Arabic! thanks to Dr. Decker and Bioscientia

• Fundraising ideas:

  • Free Krispy Kreme donut and coffee for Mom - expires 31 Aug 05

  • Personal fundraising pages

  • Donate car, truck, or recreational vehicle for benefit of VHL

  • Wristbands for a cure

  • Recycle inkjet cartridges, cell phones and more

  • Buy and sell on eBay to benefit VHLFA

  • and more ideas at vhl.org/help

• Meetings:

  • San Francisco, California, October 1, 2005

  • Bethesda, Maryland, October 23, 2005

  • Little Rock, Arkansas, November 19, 2005

  • Symposium: Toronto, Canada, May 19-21, 2006

  • Annual Meeting: Salt Lake City, Utah, June 24, 2006

• Gifts of the Artists - For a gift of $150 or more, you can choose one of these wonderful performances as your free gift. Help us meet the Janus Challenge!

VHL Family Forum, ISSN 1066-4130 Volume 13, Number 3
Annual Report  2005 Download a printable copy of this issue/p>

• It's in the Genes ... of some Pretty Terrific People

• Four New Grants awarded -- meet the researchers you are supporting 2005-2006

• On the Line ... When You Call -- meet your hotline team

• Challenge! Your Gift Goes Farther with matching grants from the Greene and Lusk families.

• Remember VHLFA in your Will

• Gifts of the Artists - For a gift of $150 or more, you can choose one of these wonderful performances as your free gift.

VHL Family Forum, ISSN 1066-4130 Volume 13, Number 4,
December  2005 Download a printable copy of this issue

• Learning about Pheochromocytomas - Report of the First International Symposium on Pheochromocytoma, Bethesda, Maryland, October 20-23, 2005

• Pheos and Children, by Alison E., Texas

• Camron and Brayden, raising money for VHL

• A Patient's Perspective, by Altheada Johnson, Brooklyn, New York

• "Just Sayin'", by Keith "Just Sayin'" Richards, Brooklyn, New York

• Wear Your Wristbands Proudly!

• A Gift of Love, by Bob Horning - a kidney transplant story

• Religious opinions about Transplantation

• Annual Meeting - Salt Lake City, Utah, Saturday, June 24, 2006

• Call for Papers - Seventh Biennial Medical Symposium on VHL
  October 26-28, 2006, London, Ontario, Canada