Newsletter 2006

April - September - Annual Report

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VHL Family Forum, ISSN 1066-4130 Volume 14, Number 1
April  2006
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• VHL Awareness - Time to Renew and Build the Research Fund
• 2006 Board Member Ballot - due June 20, 2006
• Derik's Big Heart, by Alexandra Lewis, with Ann F., Connecticut
• Survey for Parents
• New Drugs, New Hope - We Need Your Help
  • Building the Tissue Bank
  • Testing the New Drugs
• Another Clue to VHL
• Sophie's Run, Katherine's Marathon
• Ask the Family: DNA Testing and Insurance
• Feeling At Home
• Click and Ship for VHL and other ways to help
• Ask the Experts: Medications and Pheo Testing
• Introducing Alex Lewis
• New Clinical Care Center in Australia
• Meetings - please join us
  • Annual Meeting, Salt Lake City, Utah, June 24, 2006
  • 7th Biennial Medical Symposium, London, Ontario, Canada, October 26-28, 2006

VHL Family Forum, ISSN 1066-4130 Volume 14, Number 2
August/September  2006
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• Banking Tissue Spurs Research
• Tissue Banking for a Cure, by A. Lewis
  • Registering as a Researcher to obtain tissue
• Two Alex's, One Dream, by A. Lewis
• Join us in Ontario for the Symposium October 26-28
  • Invitation from Drs. Pautler and Green
• Research Project: Early Transplantation
• Donate as you Shop for your Wedding
• Growing to Serve You Better
• Back to School - Get Sox for your Books
  • Other Ideas for Fundraising
• Opening Doors for Disabled Travelers
• Ask the Experts - Partial Adrenalectomy
• UK Annual Meeting Report
• Salt Lake City Meeting Report - ELST
• Melissa's Survey
• Meetings Coming Up - Please Join Us!
  • California - Boston - South Carolina - Texas
  • Mainz, Germany - Manchester, Englan

VHL Family Forum, ISSN 1066-4130 Volume 14, Number 3
November  2006     
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