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CAMRON KING, SACRAMENTO, CALIFORNIA Camron King is Program Director for the California Association of Winegrape Growers, a non-profit trade association. He tracks state legislative and regulatory actions related to environmental and natural resource issues. His experiences include staffing non-profit boards and committees, fundraising for non-profit organizations and management and oversight of paid and volunteers staffs. He serves on a number of community boards and committees. He has a BA in Government, and will receive his Master’s in Public Policy and Administration in May 2006. Diagnosed with von Hippel-Lindau (VHL) in 1996, he has endured a number of surgeries to remove tumors from his eyes, both adrenal glands, kidney, liver and spinal cord. This experience has moved him to become more involved in advocating for greater cancer research funding, accessibility and a desire to educate the community about VHL. Camron resides in Sacramento with his wife Alicia and their son Brayden.
ROBERT E. SCHOENHALS, ROCHESTER, MICHIGAN Candidate for re-election. Rob was appointed to the Board in 2003 to fill an unexpired term and to serve as Treasurer of the Alliance. If re-elected, he has agreed to continue in that role. Rob is a Senior Finance Manager for Daimler-Chrysler in Detroit. He has served in a number of leadership roles in both career and volunteer positions. He and his wife Anita have five children. Rob, two of his children, and several other family members are affected with VHL. “VHLFA is an organization that gave me hope for the future when I needed it the most. As VHL patients and family members, we deserve more hope than most.”
JOSEPH VERDI, PH.D., SCARBOROUGH, MAINE Candidate for re-election. Joe heads a very well respected molecular biology research effort at the Maine Medical Center Research Institute in Scarborough, Maine. In his first term, Joe has undertaken the key role of Director of Research for the VHLFA. He leads the review of grant applications for us, with the help of a committee of experts in the field. With Joe’s help, we have been working toward a national repository for VHL tissue and data which will facilitate research on VHL and assist in measuring the results of clinical trials.
BRUCE WEINBERG, ESQ., SAN FRANCISCO, CALIFORNIA Candidate for re-election. A licensed attorney and avid cyclist, Bruce has extensive experience on non-profit boards, and has worked with organizations from the National Brain Tumor Foundation, Recording for the Blind & Dyslexic, and the National Association of Visually Handicapped to US Figure Skating. He has served on numerous committees for the VHLFA, and has been involved with VHL for over a decade. He has been a member of the Executive Committee as Vice-Chair of the Board for the last three years. He is looking forward to continuing his service to this great organization, and to further educate medical professionals about proper treatment for our members while keeping the organization strong.
As printed in the VHL Family Forum 14:1, April/May 2006. For permission to reprint, please contact VHL Family Alliance, editor@vhl.org. Further information is available from the VHL Family Alliance, info@vhl.org. | |||||||||||
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