I’ve been ballroom dancing for seven months, and taking private lessons with a professional dance instructor. It has been such a wonderful, positive experience in helping me to cope with having VHL disease! I’m training to be a student dance performer at upcoming Ballroom events with my teacher.

This whole experience has helped me tremendously cope with VHL. I finally feel there is more to my life than just having a disease.

I’ve attached a picture of me with my dance instructor, Timothy Nyman of Black Tie Dance Studio.

In Fall 2007 Black Tie and Tom Cruise Limo Service will be working together to have a Black Tie Gala Extravaganza to raise money for Multiple Sclerosis (MS) and VHL disease.

Their 2006 event partnered with the Cleveland Clinic to raise $5000 for MS. Next year, Tom Cruise and I will be working together to raise money for MS and VHL by having another Black Tie Gala Extravaganza.

Black Tie Dance Studio -- including me! -- will be performing for entertainment.

This is our goal for next year!

As printed in the VHL Family Forum 15:1, January 2007. For permission to reprint, please contact VHL Family Alliance, editor@vhl.org. Further information is available from the VHL Family Alliance, info@vhl.org.

mystory