The Genetic Alliance held its 20th Anniversary Gala in September, a celebration of 20 years of education and advocacy for organizations committed to rare genetic disorders. Joyce Graff was honored as part of a leadership exhibit, celebrating the exemplary leadership of those who have made organizations like ours possible.

“Joyce Graff, VHL Family Alliance. A founding member and indispensable part of the VHL Family Alliance, she embodies the ideal of leadership and dedication. As founder, member, volunteer, and now staff, she has donated her time, energy, and organ to bring together patients, physicians, and researchers to find, treat, and cure von Hippel-Lindau disease.

The quote and caption were written by our very own Bruce Weinberg, Chairman of the Board of Directors. He refers to how Joyce has given everything for the cause of VHL, including her gift of a kidney to her son Damon.

All the Board, Staff, and volunteers appreciate her ongoing leadership. Thank you, Joyce!

As printed in the VHL Family Forum 15:1, January 2007. For permission to reprint, please contact VHL Family Alliance, editor@vhl.org.