BASIC FACTS
ABOUT VHL

CARING FOR
YOUR HEALTH

PROFESSIONAL
INFORMATION

ABOUT VHL
FAMILY ALLIANCE

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VHL Family Alliance Team!

January/February 2007
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A Great Victory: Real Hope for Patients - Dr. Stéphane Richard honored for his work on VHL
- About the event
- About the prize
Overcoming Life’s Disappointments, an excerpt from a new book by Harold Kushner
Partners in Hope - Tissue spurs Research
- It's Easy for You, and it's Gold for us all
- Enrolling as a Researcher to Obtain Tissue
A Fast Horse, by Renée S., Ontario, Canada
Hats Off to Audrey, Dawn, and Lois
Dancing for VHL, by Cari E., Ohio
Joyce's Leadership Displayed, by Alex Lewis
Traveling for Treatment:
- Mercy Airlift
- Hospital Hospitality Houses
Clinical Trial of Sunitinib at M.D. Anderson in Houston
One-Stop Screening - a new study by Sally Watts, London, UK
New Online Discussion - vhl.clinicahealth.com
Influenza Vaccination for Caregivers
How Can You Help?
Become Part of the Team!

The VHL Family Alliance is looking for volunteers for the following positions:

• Awareness Advocates

• Member Advisers

• Regional Advisers

• Fundraisers

Qualifications: The desire to improve life for people affected by VHL.

Hours: As many as you would like to give!

Compensation: $0, and the glow of knowing you are making a brighter and better future for people affected by VHL.

If you are interested, or know someone perfect for the job, please contact director@vhl.org or phone the office on 1-617-277-5667 extension 4.

We Would Love to have You on the Team!

As printed in the VHL Family Forum 15:1, January 2007. For permission to reprint, please contact VHL Family Alliance, editor@vhl.org. Further information is available from the VHL Family Alliance, info@vhl.org.