Family Album

In 2007 we honor several of our families who are helping this community in some new and creative ways.

Alexandra Morais, our Volunteer of the Year, shown here with her husband and strong supporter José, has helped with support for members in Spanish language sJoséince 2001. She is one of the volunteers who answer messages sent to info-es@vhl.org. Originally from Colombia, she has a special place in her heart for Latin America. She is currently working to expand services in Mexico.

Dakota D. of Massachusetts sent us a sea shell from the beach and a donation of $2.70 with her wish for a cure for cancer.

Beth S. attended the Boston meeting in June. “I signed up for the conference this year with mixed emotions. I want to learn as much about the disease as possible for myself and my children, but I was very scared to hear about all the possible things that could happen to us. After the first lecture, I was still a little overwhelmed, but my guard came down.

"As the weekend progressed, my attitude went from scared to very hopeful. I came away from the conference with so much hope for my future and my son’s future. I was so happy to hear about all of the progress that is being made with research. The treatments are different now from when my brother was receiving them only three years ago. I also felt really connected to the other families in the room, seeing them all there in different states of health, all with such a positive attitude.

"I am having my screening done this week and next and for the first time, I don’t feel overwhelmed with anxiety. I feel empowered with the knowledge that I learned from the weekend and for that I would like to thank you.”

Jeanne McCoy of South Carolina has joined our Board of Directors this year. Jeanne has appeared on television for Comcast Newsmakers, and has done public relations work for the National Cancer Institute’s VHL program. See her video at vhl.org.

Jeanne’s mother was diagnosed late and is battling metastatic cancer. Jeanne’s message is: “Early detection is the key!” She and her husband Ellison and their three children make a special effort to support the VHL Family Alliance. Every other year they celebrate their children’s birthdays together, and ask friends and family to donate money to VHLFA in their honor.

All of these people are working together to improve diagnosis, treatment, and quality of life for everyone with VHL and related cancers.

Won’t you please help too?

As printed in the VHL Family Forum 15:4, November 2007. For permission to reprint, please contact VHL Family Alliance, editor@vhl.org. Further information is available from the VHL Family Alliance, info@vhl.org.