Newsletter 2007

January - May - September - Annual Report

VHL Family Forum, Volume 15, Number 1

January/February 2007 Download a printable copy of this issue

• A Great Victory: Real Hope for Patients - Dr. Stéphane Richard honored for his work on VHL

  • About the event

  • About the prize

• Overcoming Life’s Disappointments, an excerpt from a new book by Harold Kushner

• Partners in Hope - Tissue spurs Research

  • It's Easy for You, and it's Gold for us all

  • Enrolling as a Researcher to Obtain Tissue

• A Fast Horse, by Renée S., Ontario, Canada

• Hats Off to Audrey, Dawn, and Lois

• Dancing for VHL, by Cari E., Ohio

• Joyce's Leadership Displayed, by Alex Lewis

• Traveling for Treatment:

  • Mercy Airlift

  • Hospital Hospitality Houses

• Clinical Trial of Sunitinib at M.D. Anderson in Houston

• One-Stop Screening - a new study by Sally Watts, London, UK

• New Online Discussion - vhl.clinicahealth.com

• Influenza Vaccination for Caregivers

• How Can You Help?

• Become Part of the Team!

VHL Family Forum, Volume 15, Number 2

May 2007 Download a printable copy of this issue

• More Awareness - More Progress! - VHL hits the press

• We Need Your Vote! Five new candidates for the Board of Directors

• VHL in the Mainstream! President Bush learns about VHL

• The Legendary McCoys and their pheochromocytomas

• Mom Lives with Rare Genetic Condition - by Vikki Hopes, Abbotsford News, Ontario

• VHLFA Research Database - We Need Your Help!

• Nephrogenic Systemic Fibrosis: an uncommon side effect of MRI contrast agents in patients with impaired renal function, by Peter Choyke, M.D.

• The 2007 Annual Meeting in Boston - a 2-day meeting!

• Don't forget to vote!

VHL Family Forum, Volume 15, Number 3

September 2007 Download a printable copy of this issue

• Improving our Understanding of Pancreatic Tumors by Steven K. Libutti, U.S. National Cancer Institute

• Report from the Boston meeting, June 2007, includings radiology, radio frequency ablation, and how we can improve diagnosis of pheochromocytomas.

• Online Learning - Hear the Boston presentations!

• Radio Show for VHL???

• Joyce invited to speak at two conferences in Japan

• VHL in South Africa

• Remember the Tissue Bank!

• New Clinical Care Center in New York City: Memorial Sloan Kettering Cancer Center, under the direction of Dr. Jonathan Coleman, Urology

• Join the Conversation! ClinicaHealth.com What would you like to say to Dig?

• Our Ambassadors - Chloe and Caleb E., Texas

• Cure Steven! Cure VHL! Eat Pancakes! by Beverly A., Florida

• Meeting Planning Survey

• Regional Meetings

  • Birmingham, October 13, 2007

  • Sandusky (near Cleveland), October 20, 2007

  • Houston, November 17, 2007

  • Free Teleconference meetings

• How Can You Help?

  • Workplace Charity Campaigns - CFC, United Way, and more

• Getting Married?

VHL Family Forum, Volume 15, Number 4

Annual Report - November  2007 Download a printable copy of this issue

• Hope - Strength - Community. One family tells how VHLFA helps them in their struggle with VHL

• Researchers you are funding - Teh, Pause, and Bellgrau

• VHLFA Annual Report - How the money is allocated

• Family Album - Honoring Volunteers

• Challenge Grants! Your donation goes even farther.

• Remember VHLFA in your will

• Gifts of the Artists - a bonus for your gift of $150 or more