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Introduction to VHL for Children
Reviewers and Illustrator Needed!
by Gayun Chan-Smutko, M.S., Genetic Counselor, Massachusetts General Hospital, Boston
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Illustration by Jeffry Byrd, for FAP and Me, copyright 2004, National Society of Genetic Counselors. |
For the past year a committee of parents and professionals has been working on an introduction to VHL for children.
We are seeing more and more children who are diagnosed through DNA testing at early ages and have questions about what this diagnosis means to them. In some cases, they may have seen a parent or other relative go through some pretty difficult experiences with VHL, but there is much more hope for young people starting out now.
We wanted to provide accurate information in age-appropriate language, and help our children take responsibility for healthy choices and adherence to screening protocols.
Illustrator Needed
We are also still in the process of selecting an illustrator for the book. If you would like to submit samples of your work, please send them to the
Children’s Book Project,
VHL Family Alliance, 2001 Beacon Street,
Suite 208, Boston, MA 02135,
or e-mail them to kidsbook@vhl.org
We are seeking volunteers to review pre-publication copies of this book. Please help us make sure the book is on target and will be helpful to you and your children.
Partial funding for the illustration and production of the book has been received from the estate of Deborah L. Jones of Philadelphia.
As printed in the VHL Family Forum 16:1, January/February 2008. For permission to reprint, please contact VHL Family Alliance, editor@vhl.org.
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