Over 80 percent of NDRI’s researchers report a need for more tissues for their studies. Increasingly, the demand is for specialized normal and diseased tissues that are particularly difficult to procure. There is also a very significant trend towards a need for tissues suitable for molecular investigation, such as proteomics and nucleic acid analyses. This creates considerable challenges and requires a paradigm shift in the tissue procurement models currently employed.

NDRI is ready and willing to work with researchers to store tissue in the way you need it for your research. In order to do that, we need to hear from you -- earlier rather than later -- to understand your requirements. Even before your project achieves IRB approval, please let us know what you will need so that tissue obtained between now and then will be suitable for your project.

The VHL Tissue Collection is growing rapidly. People with VHL have shown their support for you and your efforts, and want to partner with you in moving the research forward, and finding better management -- and ultimately a cure! -- for VHL.

Please help us help you to achieve this goal.

Researchers, contact NDRI:

http://www.ndriresource.org
1-800-222-NDRI (-6374)

Medical Symposium in Denmark, September 2008

As printed in the VHL Family Forum 16:2, May 2008. For permission to reprint, please contact VHL Family Alliance, editor@vhl.org.