Newsletter 2008

January - May

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VHL Family Forum, Volume 16, Number 2 - May 2008

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• Get reimbursed for donating your DNA - the DNA Research Partnership Program
• Election ballot - vote on candidates for the VHLFA Board of Directors
• Blind Filmmaker about Adam Linn: actor and director
• GINA - The Genetic Information Nondiscrimination Act
• the NDRI tissue bank
• Primer for Researchers
• Announcement of Medical Symposium in Denmark
• Be your own best advocate - get involved!
• Report from the Minnesota Chapter
• Report from South Africa - VHLFA holds its first meeting in SA
• What can we learn from South Africa?
• Snippets and Happenings
• Changes to the online discussion group: now at www.inspire.com
• Annual Meeting Orlando, FL

VHL Family Forum, Volume 16, Number 1 - January/February 2008

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• The VHL Family Alliance Turns 15 years old!
• Nominations Open
• Introduction to VHL for Children - Reviewers needed!
• Questions to Ask your Doctor about Radio Frequency Ablation or Cryotherapy for Renal Cell Carcinoma
• CT and Radiation
• New Clinical Trial
• Managing Your Health Care Team
• Wish You Were There? Hear it all! Online Learning
• Be a Powerful Patient
• 8th International Medical Symposium, September 4-6, Roskilde, Denmark
• Edbassmaster and his sister Maureen
• Stepmom helps children embrace past, future