NEWSLETTER 2008

January - May - September - Annual Report

VHL Family Forum, Volume 16, Number 1

January/February 2008 Download a printable copy of this issue

• The VHL Family Alliance Turns 15 years old!

• Nominations Open

• Introduction to VHL for Children - Reviewers needed!

• Questions to Ask your Doctor about Radio Frequency Ablation or Cryotherapy for Renal Cell Carcinoma

• CT and Radiation

• New Clinical Trial

• Managing Your Health Care Team

• Wish You Were There? Hear it all! Online Learning

• Be a Powerful Patient

• 8th International Medical Symposium, September 4-6, Roskilde, Denmark

• Edbassmaster and his sister Maureen

• Stepmom helps children embrace past, future

VHL Family Forum, Volume 16, Number 2

May 2008 Download a printable copy of this issue

• Get reimbursed for donating your DNA - the DNA Research Partnership Program

• Election ballot - vote on candidates for the VHLFA Board of Directors

• Blind Filmmaker about Adam Linn: actor and director

• GINA - The Genetic Information Nondiscrimination Act

• the NDRI tissue bank

• Primer for Researchers

• Announcement of Medical Symposium in Denmark

• Be your own best advocate - get involved!

• Report from the Minnesota Chapter

• Report from South Africa - VHLFA holds its first meeting in SA

• What can we learn from South Africa?

• Snippets and Happenings

• Changes to the online discussion group: now at www.inspire.com

• Annual Meeting Orlando, FL

VHL Family Forum, Volume 16, Number 3

September 2008 Download a printable copy of this issue

• Dr. Emily Chew on tumors on the optic nerve

• Dr. Francis Collins on GINA

• Europe Cross Border Health Care

• US Health Care Costs

• Nutrition and Cancer

• Radio show

• Conference Recordings and Webinars

• Request for German families with VHL

• Wearing Glasses for Protection

• Q&A on Risk of Cell phones

• Calvin's Fundraiser

• Bloomsday Walk Fundraiser

• Powow Triathlon

• Stealth Exercise

• It takes All of Us!

VHL Family Forum, Volume 16, Number 4

Annual Report - November 2008 Download a printable copy of this issue

• Exciting Progress, With Your Help...

• Researchers You Are Supporting 2007-2008

• Here How Some of You Have Helped

  • Calvin's VHLstock

  • Beth's Powow Triathlon

  • Jenny and Kim's Bloomsday Walk

• Take the Challenge

• Easy Ideas to Consider