International VHL Day

May 9, 2009

On May 9th, 2009 my son Alex, a VHL warrior, will be holding a local fundraiser. It is his wish that all people around the world, also touched by VHL, will hold a fundraiser in their community on the same day. We are looking for VHL friends and families to participate and spread the word about VHL. In working with my son, it is our hope that we can all connect via the Internet, the media and in our small towns to mark this important day with global awareness.

I know that sometimes finding new and innovative ways to raise funds and awareness can be challenging. Please consider the ideas below. I welcome correspondence from you to support and guide your endeavors in this enormous undertaking. There is power in numbers and together we can raise global awareness for research and funding, and help to cure VHL, united as one family.

Consider the following fundraising options, or create one of your own:

- Dress up day/dress down day at your schools or place of work pay for the privilege of dressing differently at work or school)...usually about $3 to $5 per person
- Popcorn sales
- Candy sales
- Bake Sales
- Contact local restaurants to ask for a percentage of an evenings profits
- Hold your own “High Tea” in exchange for a donation
- Hold a “penny” drive, or loose change drive at schools in your town
- Use Tupperware. Pampered Chef, CandleLight, or any home based party company to do a presentation and have profits go to VHL

- Golf Tournaments

- Covered Dish Dinners with donations

 

See also the photo, drawing, T-shirt, and video contests in preparation for International VHL Day!

Thank you for all your efforts!

Together we can raise awareness and cure VHL.

Let’s all be sure to tell Anita in the VHL office about our plans too, so that she can put them on the VHL calendar and include them in her national press releases!  Together, we will have more access to the press than any of us can as an individual.  Let’s make some BIG noise in the press!  Send your ideas to anita@vhl.org.

Already signed up: Florida, Massachusetts, Minnesota, Washington state, Wisconsin, and Germany  -

Please join the fun!

As printed in the VHL Family Forum 17:1, January/February 2009. For permission to reprint, please contact VHL Family Alliance, editor@vhl.org. Further information is available from the VHL Family Alliance, info@vhl.org.