Calendar of Events - see also vhl.org/meetings

Please join us at one or more of these exciting events!  

All meetings and further details are listed at http://www.vhl.org/meetings, or call 800-767-4845 ext 4.

• Second Wednesday of each month - Global call-in telephone line with Joyce Graff, 2 and 8 pm Eastern US time February 11, March 11, April 15*, May 13 (April shifted due to holidays)

 

• January 4, 2009 - fundraising event in Ireland! -- Gloria and friends raised $3000 for VHL!
  
  
• January 29, 2009 - Webinar with Jessica Everett, Genetic Counselor: Pregnancy and Family Planning with VHL
  
  
• February 1, 2009 - Massachusetts Meeting - Watertown, Massachusetts: Laughing Matters, with Sandy Boris-Berkowitz.  Come laugh with us! 2-4 pm at the Watertown Library. 
  
  
• February 28, 2009, International Rare Disease Day!  sponsored by NORD and EURORDIS. Help us participate in events in your local area! Call 800-767-4845, ext 722
  
  
• March 22-28, 2009, CoverTheUninsured Week! (U.S. only) Help us participate in events in your local area! Call 800-767-4845, ext 722
  
  
• March 25, 2009, VHL Regional meeting, Austin, Texas. 
  
  
• March 31, 2009, deadline to submit T-shirt designs for the T-shirt contest
  
  
• March 31, 2009, deadline to submit drawings and photos for the Kids’ Book illustration contest
  
  
• April 29, 2009, deadline for submissions for the YouTube Contest.
  
  
• May 9, 2009- International VHL Day! Help raise visibility of VHL, and raise money to support    VHL awarenessm education and research. We need YOU to help make it successful worldwide. Call 800-767-4845, ext 722, or write to anita@vhl.org for further information 
  
  
• Saturday, June 27, 2009, Hyatt Regency Orange County, 11999 Harbor Blvd, Garden Grove, CA  92840, VHL Family Alliance Annual Meeting, June 27, 2009, all day, Saturday, 8 AM to 5 PM. Make your own hotel reservations by May 15, +1-714-750-1234 or http://orangecounty.hyatt.com
  
  
• Reserve the dates!
  • German VHL Family Alliance - 10th birthday celebration, October 16-18, 2009, in Berlin
  • 9th International VHL Medical Symposium, October 10-12, 2010, in Rio de Janeiro
                              Bilingual meeting, English and Spanish

As printed in the VHL Family Forum 17:1, January/February 2009. For permission to reprint, please contact VHL Family Alliance, editor@vhl.org. Further information is available from the VHL Family Alliance, info@vhl.org.