Clinical Trials Open

There are three clinical trials open for people with VHL.  In all three cases, candidates must have one measurable solid kidney tumor, of any size. 

People with tumors of the brain, spinal cord, and eye may be included as long as they meet this requirement for a kidney tumor, since the primary focus of the trial is to measure the effectiveness of the drug on kidney tumors.  Nonetheless, its effects on other tumors are very much of interest.  If you consider your kidney tumors “not a problem” but another problem more urgent, it is still worthwhile to speak with these trial coordinators.

To inquire about these trials, please contact:
Dr. Eric Jonasch, Urologic Oncology, M.D. Anderson, Houston, Texas. 832-633-4519 Trial of Sutent for VHL

Sally Fowler, R.N., Urologic Oncology, 301-435-6255.  Trials of drugs from Astra Zeneca and Aveo for VHL.

Dr. Ram Srinivasan, urologic oncologist with the NIH team, will report to us in St. Louis on the status of these trials.

As printed in the VHL Family Forum 18:1, February 2010. For permission to reprint, please contact VHL Family Alliance, editor@vhl.org. Further information is available from the VHL Family Alliance, info@vhl.org.