NEWSLETTER 2010

February - May - September - Annual Report

VHL Family Forum, Volume 18, Number 1

February 2010 Download a printable copy of this issue

• Treating VHL Brain and Spinal Tumor

• Investment in Research

• Events which touch us deeply make us strong

• Dispute over Body Weight Presents Issues
• What's in a name?
• Annual Meeting in St. Louis
• Another way to Help
• The Beginning of the Story
• You are Not Alone
• VHL in Russia
• Clinical Trials Open
• VHL Awareness May 8
• Nominations are open
• DNA Reimbursement Continues!
• Hope - It’s In Our Genes!
• Regional meetings

VHL Family Forum, Volume 18, Number 2

May 2010 Download a printable copy of this issue

• Thoughts on the new U.S. Health Care Law

• Selecting Treatment Options

• Genetic Non-discrimination
• St. Louis Conference
• Revising the Handbook
• Candidates for re-election
• Voting Ballot
• Laughter with Hillary

• Cleaning for a Reason

• Meeting in Rio de Janeiro
• Getting help with digestive complaints
• Chocolate!
• Executive Director search
• Hope, by Amanda H.
• Great Non Profits

VHL Family Forum, Volume 18, Number 3

September 2010 Download a printable copy of this issue

• The VHL gene, genetics, and mutations

• Difficulty Sleeping?

• Love in Time of Sickness
• My Story
• Running for VHL
• Rock ‘n Roll, running to help all with VHL
• Gamers take on Protein Challenges
• Viviane's Story
• Program for 2010 conference in Rio
• Invitation to Rio, Join Us!
• I see courage
• Painless Donations
• Pheo Study at NIH
• Deceptive Genetic Tests
• Join us at a local meeting!

VHL Family Forum, Volume 18, Number 4

November 2010 Download a printable copy of this issue

• Educating and Empowering People with VHL

• Holiday Gifts
• Report for Fiscal 2010
• Donation Challenge!
• Feedback from Families with VHL
• Research Grants you are Supporting
• Remember the Family Alliance in your Will