NEWSLETTER 2011

February - May - September - November

VHL Family Forum, Volume 19, Number 1

February 2011 Download a printable copy of this issue

• Emergency! Are you prepared? (part one)

• Emergency! Are you prepared? (part two)

• Communicating with First Responders
• Having Healthy Babies
• Our Experience
• Our Best Mistake
• Expecting a Boy
• Report on the Hungarian VHL Symposium, 2010 November
• CCC in St. Louis, Missouri
• Personal Report from the Rio Symposium
• Report from Rio
• Updating the Screening Protocol
• Upcoming Meetings

VHL Family Forum, Volume 19, Number 2

May 2011 Download a printable copy of this issue

• Understanding How Genotype Influences Phenotype

• Interview with Trisha Torrey

• Jordan's Story

• Conquering Cancer: Joining Science and Engineering

• Partners in Research: Data Sharing, Privacy, and Consent
• Radiation Exposure and CT Exams

• Genetic Non-Discrimination is Now Law

• Minnesota Chapter Report
• Dutch VHL Annual Meeting
• Upcoming Meetings

VHL Family Forum, Volume 19, Number 3

September 2011 Download a printable copy of this issue

• Introducing Ilene Sussman
  • Message from Ilene
• Results from the Pheo Survey
• Meet the New Board Members
• VHL Victor
• How about some Chapstick?
• Interview with Robert Wolff

• Meet the new Medical Advisory Board Members

  • Dr. Steven Libutti
  • Dr. Gennady Bratslavsky

• Endocrinology Meeting & Expo

• Altheada Johnson—A True Pioneer

• Remembering Peggy and Don Marshall

• Glacial Energy: support for VHL

• Fun and fundraising

  • Beth Smith’s Triathalon

  • Rick Bracey 29er Softball Tournament 2011

  • Shana’s Mother’s Day Run

  • Outdoor Workout for VHL

  • London Marathon Fundraiser

• Announcing the VHL Medical Symposium, 2012
• Upcoming VHL Family Alliance Meetings

VHL Family Forum, Volume 19, Number 4

November 2011 Download a printable copy of this issue

• The Time is Right for Advancement in VHL Support and Research
• Surviving VHL - a poem by Keith "Just Sayin'" Richards
• Report for Fiscal Year 2011
• Remember VHLFA in your Will
• Research Projects Your Dollars are Supporting
  • Eleanor Rattenberry, University of Birmingham, England
  • Dr. Haifeng Yang, Cleveland Clinic, Ohio
• Give to VHLFA while Shopping on the Internet
• We Need Your and Your Help Funding our Urgent Efforts
• Please Donate Now! Your contribution will be matched!