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Online Issues of the VHL Family Forum

 

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Adobe Acrobat logo   File Document Date Lead Article
vhln1111rr.pdf
Annual Report
October 2011 The Time is Right for Advancement in Research and Support
Family Forum
Sept 2011 Introducing Ilene Sussma
vhln1105.pdf
Family Forum
May 2011 Understanding How Genotype Influences Phenotype
vhln1102.pdf
Family Forum
Feb 2011

Emergency! Are You Prepared? part one)

vhln1011rr.pdf
Annual Report
Nov 2010 Educating and Empowering People with VHL
vhln1009.pdf

Family Forum

Sept 2010 The VHL gene, genetics, and mutations
vhln1005.pdf
Family Forum
May 2010 Thoughts on the new U.S. Health Care Law
vhln1002.pdf
Family Forum
Feb 2010 Treating VHL Brain and Spinal Tumors

vhln0911rr.pdf

Annual Report
Nov 2009 The Changing face of VHL

vhln0909.pdf

Family Forum
Oct 2009 Dealing with Inconclusive DNA Testing
vhln0905.pdf
Family Forum
May 2009 To Scan or not to Scan?
vhln0901.pdf
Family Forum
Feb 2009 DNA Reimbursement Program Extended
vhln0811rr.pdf
Annual Report
Nov 2008 Exciting Progress, With Your Help...
vhln0809.pdf
Family Forum
Sept 2008 Therapy of Retinal Angiomas of VHL
vhln0804.pdf
Family Forum
May 2008 Reimbursement for DNA testing!
vhln0801.pdf
Family Forum
Jan 2008 It's Our 15th Birthday!
vhln0711rr.pdf
Annual Report
Nov 2007 Hope - Strength - Community
vhln0709.pdf
Family Forum
Sept 2007 Improving our Understanding of Pancreatic Tumors
vhln0704.pdf
Family Forum
Apr 2007 More Awareness - More Progress!
vhln0701.pdf
Family Forum
Jan 2007 A Great Victory: Real Hope for Patients
vhln06ar.pdf
Annual Report
Nov 2006 These Children Need Your Help -- Let's Find a Cure!
vhln0608.pdf
Family Forum
Sep 2006 Tissue Banking Spurs Research
vhln0605.pdf
Family Forum
Apr 2006 Membership Renewal/Derik's Big Heart
vhln0512.pdf
Family Forum
Dec 2005 Learning about Pheochromocytomas
vhln05ar.pdf
Annual Report
Nov 2005 It's in the Genes ... of some Pretty Terrific People
vhln0508.pdf
Family Forum
Sep 2005 Stereotactic Radiation or Gamma Knife
vhln0504.pdf
Family Forum
Apr 2005 20 Tips to Help Prevent Medical Errors
vhln0412.pdf
Family Forum
Dec 2004 Improving Diagnosis of VHL
vhln04ar.pdf
Annual Report
Nov 2004 Stronger Base, Reaching Outward
vhln0408.pdf
Family Forum
Sep 2004 Endolymphatic Sac Tumors in VHL
vhln0403.pdf
Family Forum
Apr 2004 Coping with VHL
vhln03ar.pdf
Annual Report
Nov 2003 100 Years of Progress
vhln0312.pdf
Family Forum
Dec 2003 Dogs Do More Than Bark
vhln0309.pdf
Family Forum
Sept 2003 VHL and Oxygen Regulation
vhln0306.pdf
Family Forum
June 2003 Down's Syndrome May Hold an Important Clue
vhln0303.pdf
Family Forum
Mar 2003 Natural History of Hemangioblastomas
vhln0212.pdf
Annual Report
Dec 2002 2002 Research Report
vhln0209.pdf
Family Forum
Sept 2002 Pheochromocytoma: Often Inherited
vhln0206.pdf
Family Forum
June 2002 Report from Padua
vhln0203.pdf
Family Forum
Mar 2002 Ophthalmic Issues in VHL
vhln01ar.pdf
Annual Report
Sept 2001 We Need Your Help!
vhln0112.pdf
Family Forum
Dec 2001 Pregnancy and VHL
vhln0109.pdf
Family Forum
Sept 2001 A Family's Milestone: Kidney Transplant
vhln0106.pdf
Family Forum
June 2001 Study of Rare Disease helps unravel key question of human biology
vhln0103.pdf
Family Forum
Mar 2001 Test for Genetic Privacy
vhln0012rr.pdf
Research Report
Dec 2000 New Hope ... New Drugs
vhln0012.pdf
Family Forum
Dec 2000 Q&A about DNA Testing
vhln0009.pdf
Family Forum
Sept 2000 The Human Genome has been Sequenced: Now What?
vhln0006.pdf
Family Forum
June 2000 First in the Family: VHL Mosaicism
vhln0003.pdf
Family Forum
March 2000 Laparoscopic Cryoablation for RCC
vhl9912.pdf
Family Forum
Dec 1999 Finding Elusive Pheochromocytomas
vhl9912rr.pdf
Research Report
Dec 1999 VHL Care in the New Millennium (pdf only)
vhl9909.pdf
Family Forum
Sept 1999 Managing Pancreatic Tumors
vhl9906.pdf
Family Forum
June 1999 The Structural Biology of VHL
vhl9903.pdf
Family Forum
March 1999 To Know, or Not to Know . . . That is the Question
vhl9812rr.pdf
Research Report
Dec 1998 Pioneers Needed for the New Frontier
vhl9812.pdf
Family Forum
Dec 1998 Report from the Paris Symposium
vhl9809.pdf
Family Forum
Sept 1998 Retired Marine Fights for Our Lives
vhl9806.pdf
Family Forum
June 1998 Caution Urged for Stereotactic Radiosurgery
vhl9803.pdf
Family Forum
March 1998 Childbearing Choices
vhl9712.pdf
Family Forum
Dec 1997 Exploring the Faith Factor
not available online
Research Report
Dec 1997 A Partnership with Families
vhl9709.pdf
Family Forum
Sept 1997 Ocular Manifestations of von Hippel-Lindau (VHL) Disease
vhl9706.pdf
Family Forum
June 1997 Endolymphatic Sac: Hearing Loss in VHL
not available online
Family Forum
March 1997 Living with a Brain Tumor
vhl9612.pdf
Family Forum
Dec 1996 Know Your Mutation!
not available online
Family Forum
Sept 1996 The Future Holds Promise and Problems
vhl9606.pdf
Family Forum
June 1996 VHLFA Research Database
vhl9603.pdf
Family Forum
March 1996 Taking a Closer Look at Phytochemicals
vhl9512.pdf
Family Forum
Dec 1995 Challenge Grant!
vhl9509.pdf
Family Forum
Sept 1995 Caring for your Reproductive Health
vhl9506.pdf
Family Forum
June 1995 Kidney Study Shows Effectiveness of Conservative Treatment
vhl9503.pdf
Family Forum
Mar 1995 New from the Laboratory of Immunobiology
vhl9412.pdf
Family Forum
Dec 1994 Breakthrough Research
vhl9409.pdf
Family Forum
Sept 1994 Robot Does Brain Surgery
vhl9406.pdf
Family Forum
June 1994 VHL Clinical Care Centers
vhl9403.pdf
Family Forum
March 1994 Teamwork for Health
vhl9312.pdf
Family Forum
Dec 1993 VHL Disease in France
vhl9309.pdf
Family Forum
Sept 1993 The Art of Conscious Living
vhl9306.pdf
Family Forum
June 1993 VHL Tumor Suppressor Gene Found!
vhl9303.pdf
Family Forum
Mar 1993 What is VHL?