VHL Handbooks

What you Need to Know about VHL

A Reference Handbook for people with von Hippel-Lindau Disease, their families, and support personnel

Click here for downloadable PDF: The VHL Handbook—What You Need to Know About VHL

What You Need to Know About VHLWhat You Need to Know About VHL is a reference handbook for people with von Hippel-Lindau, their families and support personnel. Updated 2012. Designed to be read by patients, their physicians and members of their health care teams, it explains how VHL occurs, how to monitor and test for possible medical issues, and common treatment options to be considered. This book is designed to foster constructive teamwork among the patient, the family, and the various health care professionals who will be involved in care.

List price $14.99 at online booksellers (Amazon.com etc)
Discounted price: $10

 If you want the book in another language, click below to get a handbook in the language you want.
manual en español
manuel en français
nederlandse handboek

Handbook in Hindi

VHL Handbook Kids’ Edition

Click here for downloadable PDF: VHL Handbook: Kids’ Edition (2009)

2009 VHL Handbook Kids EditionVHL Handbook Kids’ Edition by VHL Family Alliance
Our beautiful new VHL HANDBOOK KIDS’ EDITION is available for $12.99, but members can purchase it for just $6.50. Follow the link below to start your purchase! “Written by a team of parents and professionals and illustrated by kids with VHL, the book is upbeat and hopeful, helping children understand VHL and how to manage their health.”

List price: $12.99 at online booksellers (Amazon.com and others)
Discounted price: $6.50

great non-profile
verified vhl authorize.net
Belgium   Brazil   Canada   China   Croatia   Denmark   France   Germany   Great Britain   Greece   Hungary   Ireland   Italy   Japan   Lithuania   Netherlands   Norway   Poland   Portugal   Spain   Switzerland   Sweden   Turkey  
©2015 by The VHL Alliance. All Rights Reserved.
The VHL Alliance is a tax exempt 503(c)3 corporation
Last Modified: March 12, 2015

This website is certified by Health On the Net Foundation. </a>Click to verify. This site complies with the HONcode standard for trustworthy health information: verify here.