Patient Power!

YOU are your own first and most important health care provider!

YOU spend more time with your body than the doctor

YOU know where you hurt, when you hurt, and can figure out connections with meals, activities, or times of the month.

YOU did not go to medical school, so you need the skills of your doctor too!

AND your insights are also important. Find a doctor who respects your input and treats you as a member of the team.

 

Hi, I'm Joyce Graff. I've been working with people with complex medical conditions for forty years -- myself, my family, and a community of people with von Hippel-Lindau disease, a genetic cancer syndrome.

The strategies we have developed will help ANYONE working with a complex medical problem.

Read HOW TO HELP YOUR DOCTOR SAVE YOUR LIFE

And BE WELL!

One of our Speakers would be happy to talk with your audience about managing your health, preserving family health information, and passing it carefully to your grandchildren. We can involve people from your local area, or take questions from callers.

Dr. Katherine Nathanson, Geneticist, Hospital of the University of Pennsylvania, says "It is especially helpful to see a clinical team that not only understands one part of your problem, but the whole story behind it." See her or one of the other clinical care centers for VHL.

Hear Joyce on the Bob Cudmore Show on WVTL

Copy and print Your Family Health Tree and collect health information for your family.