Walk for VHL

Spokane, WA

Jenny M. and Kim H. joined 50,000 trekkers this month for the annual Bloomsday walk in Spokane, WA. Here is Jenny’s description.

“We had such a wonderful time.  We enjoyed having Kim stay with us and getting to know more about her and  learning her story. We were at the start gate when a couple ladies started talking to us about VHL - they have BHD (Birt-Hogg-Dube  syndrome) and are seen at NIH.  They heard about VHL through their  genetics counselor, Lindsie, whom Kim also knows.  Isn't it a small world?

“Anyway, we were amazed at the number of people, both participants  and spectators alike, that asked us about VHL.  There were 50,000  participants and many more spectators.   People were cheering us on saying "Way to go VHL!" and radio stations positioned throughout the 7.46  mile course always asked what VHL stood for and then gave us a plug  over their loud speakers.  We decided my sister, Conny, should be our official spokesperson because she did such a good job explaining  VHL to everyone. 

"KXLY TV interviewed Kim and me and the interview  will air today (thanks to Sallie Rowe).  It was such a great  experience I encourage more people to do something similar to just get the VHL name out there -- if they see it, they will ask about  it!  We decided next year we will hand out cards with info to those who ask about VHL and once again we will put VHL.org on our shirts. 

“Attached are a couple photos of the group and Kim and me.  Kim and I  thought the sign is a great motto for anyone dealing with a medical condition.  I do regret that I didn't take off the fanny pack before taking the photo. I can't believe Kim let me do that!” 

Jenny and Kim raised over $2000,

and it’s... still coming in!