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Online Press Kit

 

Thank you for your interest in von Hippel-Lindau disease

 

The following articles are available as html files, or as pdf's. Click here for a sampling of articles that have appeared in the press

 

Press Kit:

 4:11 minute presentation - My Life with VHL write to: info@vhl.org

for video file

 3:00 minute - Animation of Von Hippel-Lindau Disease

write to: info@vhl.org

for video file

 VHLFA Applaudes Grey's Anatomy on Featuring VHL, 12/13/2010  vhlfa_greys_anatomy.pdf

 60-second PSA produced by KXLY, Spokane, WA

 VHL-PSA-60.mp3

 VHLFA Receives Best of Boston Award from the Advocacy Group  

 One-page overview of VHL and VHLFA

 vhlfaonepage.pdf

 8 Ways to Help your Doctor Save Your Life

 8ways.pdf

 How to Save Your Grandchildren

 blackforest.pdf

 Rare Disease Strip-Tease

 ladymissiris.pdf

 Just Sayin' - Rapping for Health

 justsayin.pdf

 2011 Annual Report

 full text

 

[Last modified 16-Jan-2012 ]