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Index of Medical Topics
Introduction to Clinical Features and Issues
Clinical Care Centers, Sources of consulting
and second opinions:
Tissue Bank
"Tissue must be obtained within 24 hours or it cannot be used
for research."
Research Databases
Screening & Diagnosis
Drug Interactions
Possible Danger of Post-Treatment Infection
Eyes
- VHL in the Retina
, from Handbook
- Aiello and Cavallerano, Ocular
Complications of VHL
- Clinical Trials
for Eye Lesions
- Driving
Tips for Monocular Individuals
- Cryotherapy, by Robert B. Welch, M.D.
- Michael H. Foerster, Conventional
Treatment for Retinal Hemangioblastoma in VHL
- Michael Kreusel, Vitreoretinal
surgery and radiation therapy as alternative treatment modalities
in advanced capillary hemangioma of the retina
- Robert Foerster, Ocular aspects
of VHL
- Emily Chew, M.D., Ocular
Manifestations of VHL
- Resources: Is Reading
Hard? Vision and Independence
- Ask the Experts: Eyestrain,
Ocular Ultrasound
- Ask the Experts: Examining
Eyes
- At Second Glance:
when the look fits, experts in ocular prosthetics shine, by John Beifuss,
The Commercial Appeal, Memphis, Tennessee
- VHL Eye Care Survey,
report by Joyce Graff
- Ask the Experts
Brain, Spinal Cord, ELST
"...the option of cochlear or brainstem implants should be considered
and discussed before tumor surgery. . . .The auditory nerve must be
preserved during surgical removal of the tumor."
Stereotactic Radiosurgery (Gamma knife)
ELST: Hearing, Tinnitus, Endolymphatic Sac Tumors
Kidney
- VHL in the
Kidney, from Handbook
- Articles on VHL in the Kidney
- Kidney Study
Shows Effectiveness of Conservative Treatment
- Clinical Trials for Kidney Lesions
- P. Choyke, Preserving
Normal Function: Kidney, Adrenal, Pancreas
- Link between VHL and Sporadic
Kidney Cancer
- The latest findings from the National
Cancer Institute's research on the genetics of kidney cancer; sometimes
research studies and clinical trials.
- Andrew C. Novick, Kidney
cancer and kidney failure in VHL
- Gladys M. Glenn, Renal
cell carcinoma familial and sporadic types, molecular genetics.
- Hiltrud Brauch, Somatic
VHL mutations in clear cell renal carcinomas
- Christophe Béroud, Detection
of VHL gene mutations in sporadic renal cell carcinoma and development
of a VHL database
- H. Jochen Decker, Mutational
analysis of the VHL tumor suppressor gene in 106 sporadic renal
cell carcinomas: involvement of the clar cell type as well as the chromophilic
type
- Ask the Experts: Kidney
Stage or Grade
- Hartmut P. H. Neumann, Tumor
Growth and Radiology
Kidney Transplantation
Adrenal Glands
- Learning about Pheochromocytoma, report from the First International
Symposium on Pheochromocytoma
- Pheos
and Children, by Alison E., Texas
- New Technique: Laparoscopic
Surgery for Pheochromocytoma, Prof. Hartmut P.H. Neumann, M.D.,
interviewing Prof. Günter Janetschek
- VHL in the Adrenal
Glands, from Handbook
- P. Choyke, Preserving
Normal Function: Kidney, Adrenal, Pancreas
- Peggy Graham, R.N., The
Many Masks of Adrenal Involvement
- Testing for Pheochromocytoma
- VHL Family in Hungary,
Hannah S., Budapest
- Hartmut Neumann, Lesions of
endocrine organs in von Hippel-Lindau disease
- Cornelius J. M. Lips, Renal
cell carcinoma in von Hippel-Lindau disease: Strategies in early
detection and treatment
- Dominique Chauveau, Renal involvement
in 43 consecutive patients with von Hippel-Lindau disease
- Nobuo Shinohara, Nephron-sparing
operation for renal cell carcinoma in von Hippel-Lindau disease.
- Laura Schmidt, A Canadian family
with hereditary papillary renal carcinoma (not VHL)
- Artist and Entrepreneur:
Pierre Jacomet (undiagnosed pheo for 50 years)
Pancreas
Epididymis and Broad Ligament
Pregnancy
Transplant Issues
Prevention, or at least Softening the course of the disease
"Moderate endurance exercise, such as brisk walking,
stimulates positive changes in ... the body's first lines of defense
... On the other hand, high intensity exercise may have a negative
impact on immune function."
Facilitating Recovery from Surgery
Understanding the Genetics of VHL
- Know Your Mutation!
by Berton Zbar, M.D., U.S. National Cancer Institute
- Recent Insights into
the Functions of the von Hippel-Lindau Protein, by William G. Kaelin,
Jr., M.D., Ph.D., Dana-Farber Cancer Institute, Boston, Massachusetts
- Link between VHL
and Sporadic Hemangioblastoma of Brain and Spinal Cord
- Link between VHL and Sporadic
Kidney Cancer
- The NCI VHL Classification
System
- Role Found for Tumor Suppressor
Gene, Dr. Richard Klausner, National Cancer Inst.
- William Kaelin, Functional
analysis of the von Hippel-Lindau gene product
- Michael Chamberlin, Basic
mechanisms of transcript elongation by RJNA polymerases
- Thomas Stackhouse, Phosphorylation
of the VHL tumor suppressor protein by casein kinase II
- Nikolai Kley, Characterization
of the VHL tumor suppressor gene and VHL knock-out mice
Pros and Cons of DNA Testing
- Taro Shuin, Germline mutations in the von Hippel-Lindau
disease gene in Japanese
VHL.
- Frederick J. Hes, Genotype/phenotype correlation in
Dutch VHL families
- Eigil Kjeldsen, von Hippel-Lindau's disease in Denmark:
past, present, and future.
- S. Olschwang, Genomic characterization of alterations
associated with the VHL disease in France.
- Eamonn Maher, England,
Genotype-Phenotype correlations in VHL
- More than 500 Mutations found in
the VHL gene
Prospects for New Therapies
History of VHL
- Y. Edward Hsia, M.D., Introduction
to Hawaii 96 Symposium
- James M. Lamiell, M.D., History of VHL (abstract,
full article)
- Hartmut P.H. Neumann, M.D., VHL: progress, problems, and prospects
(abstract, report)
- Joyce W. Graff, VHL: consumer concerns, needs, and hopes (abstract,
report)
Nursing Issues
- Debra Schmidt, Nursing assessment in cancer (abstract)
- Ginnie Coggins, Nursing Management in cancer (abstract)
- Personal Stories can be revealing for difficulties in diagnosis.
(In the Search utility, use the keyword
"mystory" or see the listing in the Family
Index
- Nutrition and Complementary Therapies
are important for keeping the spirit and stamina strong for dealing
with chronic illness and multiple surgeries. Stamina and the strength
of the immune system have a strong bearing on the number of new tumors
a patient is likely to experience.
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